Post treatment ideas

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Hi everyone,

I’ve not been on here for ages. To be honest I became very good at doom scrolling and couldn’t cope with anything than “happy” stories. 
I finished my chemoradiotherapy at the end of Jan 2026, has my first PET/CTMRI scans as all clear in June and a sigmoidoscopy on Sept also saying all clear. My next scans are in early Jan. 

I’ve had long term effects of really itchy and inflamed areas front to back! I ended up getting a referral to an oncology gynae for her help. I have been put on steroid creams and then when it’s all under control I have a weaning off period so I don’t end them abruptly. 
interestingly she also took bloods to check my hormone levels. I was n HRT patches. My bloods showed the patch was as good as an Elastoplast and was making no difference. So she has changed my HRT and I’m now waiting for further bloods in 6 weeks. I would really advise getting this done as the slam into menopause is much harsher than a normal woman’s experience. 
Alomgside the steroid creams, she also prescribed me a vaginal oestrogen cream and this has made a massive difference in the general “health” of my vagina and surrounding areas. She said the stenosis we get is almost impossible to deal with if your tissues are too fragile to heal. This cream has “plumped” things up again and using dilators and then sex has been possible without feeling like I’m going to shred myself! So please ladies, look into this. It’s been a game changer. I just hope this helps others….

  • Hello  

    It is really good to hear from you again, and thank you so much for posting about your experience with the oestrogen cream.  I for one found it extremely interesting as my own research has shown that the skin tissue in the area after radiotherapy is damaged and extremely fragile and I have gone down many routes trying to find some relief.  And I am much older than you, way past the menopause, nevertheless before treatment enjoyed an active sex life.  After radiotherapy the attempts we made resulted in the skin splitting in my perineum before anything could happen!

    I know I am not the only one affected by far so I am hoping that the others who are pick up on your post - thank you again!

    Irene xx

  • I split my perineum too, I said to my gynae I was giving myself episiotomies! But now she has said to use the cream and then a tiny bit to rub over perineum and vulval area the difference is incredible. My skin there just couldn’t heal as it was just too fragile but now it’s had a new lease of life it’s been able to heal and it’s back to normal. Amazing. 

  • Having hormone levels checked was also eye opening. My patches made zero impact. Now that regime has changed after a few trial and errors my hormone levels and everything else is improving