Lymph nodes results

Hi AllyL ,

That’s better news than it could have been definitely so yes I’d view that as a win also. 

I’m pleased you’re recovering well from your surgery & I think we’d all be surprised if we were aware of just how many people these days are actually living with cancer. 

Nerve pain is dreadful, especially at night! I’ve been left with bilateral sciatica & my right side has been awful this week, I’m a natural side sleeper & the sciatica doesn’t like me being on my side so I’m over & over during the night. I’ve got everything crossed that yours will settle down soon. 

Sending lots of healing thoughts your way.

Nicola 

Hello Ally,

It goes without saying that I had been hoping that both nodes would be clear, so while I agree that’s a small win I’m sorry it’s not a complete one. 

I understand that it must be hard gearing up for the next round of treatment but I really hope that your appointment with the prof is productive and that you are able to further explore HIPEC. 

Your positivity remains so inspiring despite everything you’ve faced and continue to face.

I remain impressed by the services where you are and  have every hope that you will be able to access the best possible treatment in the shortest time. 

I’m sorry that you’re being impacted by nerve pain. It really is horrible and last thing you need on top of everything else. Very much hope it improves soon.

Wishing you all the very best for next steps and big hug to you. Xx

Keeping everything crossed for your results PEB.

Ally xx

Thank you Ally. The waiting is hard but hoping to get results and plan on 4th. Xx

Hello AllyL 

I am so very sorry to hear that - I had really hoped that the hot spots would be nothing.  But on the plus side (it must be difficult to find one) you have what appears to be a very bullish team looking after your best interests and within a timescale that most British oncology departments could only dream of.  I thought that you had already had systemic chemo, but I was obviously mistaken.  So I hope your experience will be like mine - some fatigue, hair loss but really bearable.

So to reiterate what I was told, "the systemic chemotherapy targets the lung (in my case my secondary), the lymph nodes, the primary, and the bloodstream, we are trying to stop anything new from the bloodstream spreading elsewhere, as well as targeting all the cancer".  And I was amazed to hear (I had had a second PET scan after the first treatment) that after one treatment everything had shrunk and was much fainter.  So I understand why your oncologist is taking you down the route of systemic chemotherapy before any other treatment is planned.

Ally, you are absolutely not a statistic; we are with you in mind and spirit.

Big hug

Irene

Morning Irene

As always your words give me lots of positive energy.

Fast appointments, scan results and treatment are the reason I still feel sane in this madness. I am hoping that the recent surgery does not delay my chemo start date.

I had 5 rounds IV cisplatin, along side my radiotherapy last year. It's really toxic stuff and not used so often in the UK. I managed it really well, no neuropathy, but I now have tinnitus.

Not sure what they will use this time, but all the normal chemo stuff is available. If it's all IV, I will have to stay in hospital this time as, the weather is still unpredictable over hear.

Big hugs back at you.

Ally xx