Hi All,
I’m absolutely wiped out — tired to the bone, achy everywhere, and moving at about half‑speed. I knew the fatigue would hit, but it still catches you off guard when it actually arrives.
My mum’s coming today to help me tidy up because I’ve got someone coming to service the boiler tomorrow, and honestly… I cannot believe the sheer amount of leaflets I’ve accumulated over the last few weeks. Every appointment seemed to come with another stack. I’m looking around thinking, “How many different ways can they tell me the same three things?” It’s ridiculous. I could probably insulate the house with them at this point.
But despite the exhaustion and the paper mountain, I’m glad I saw the treatment through. There’s a strange mix of relief and depletion happening at the same time, but underneath it all is a quiet sense of “I did it.”
I’ve also been invited to give feedback to the Patient Experience team, which I’m actually grateful for. If sharing what I’ve been through helps improve things — including maybe reducing the leaflet avalanche — then it’s worth doing.
For now, it’s rest, fluids, and letting my body catch up with everything it’s been through. I have raw skin, 2 painful BMs every morning within about 40 minutes to an hour of getting up, just enough time for the instillagel to start working and just enough time to mentally prepare myself to be able to do it.
Sending strength to anyone else in this phase — it’s rough, but we’re getting there.
Becky xx
