MRI results and chat with surgeon

Hello Ally,

Great news that the large tumour has almost disappeared. That’s a great response to treatment and I very much hope that the thickened area turns out to be scar tissue. I know that’s been the case for many of us at the 3 month mark.

It’s also good that your scan results are being reviewed in detail and that the rest of the results will be available so quickly. Very impressive compared to the waiting times in the uk. Your team and sound amazing and despite everything you are going through, it seems that you are in very good hands. 

Of course I am absolutely hoping that the colonoscopy and biopsies don’t show any spread. Rooting for you.

You sound wonderfully positive and it’s good that you are feeling so well. 

Wishing you well for the results and next steps.

xx

Thank you PEB24, hoping it's scary tissue.

Everything is quick here and at first I thought it was a reflection of my medical status. It's not, it's just how the system works. No layers of admin, waiting for letters and test results. Doctors will directly answer your calls and appointments within days.

The slight downside is the travelling to private specialist hospitals and the lack of aftercare when you leave hospital.

My partner has administered injections, supported me with my stoma and he will be my nurse at home, if I do have the op. I couldn't do it alone and it's not for the faint hearted.

If I take ill at home my nearest state hospital is not fit for purpose, so 90 minutes drive and no ambulance available.

I hope we have made the right decision to stay abroad and only time will tell.

Ally xx

Meant scar tissue!!

Hi AllyL , 

It sounds as though you’ve had a great response to the treatment & hopefully the biopsies will be negative & just scar tissue. There’s been many people through this group in my time here that have had EUA’s, it’s not what we’d choose but it’s a necessity to give you peace of mind isn’t it? 

You sound as though you’re in a good headspace & are mentally preparing for every eventuality. I do hope it’s good news for you.

You’re in my thoughts & I'm sending loads of positive thoughts your way.

Nicola 

Hi Ally,

 I think scary tissue is pretty accurate!

 It must be challenging being so far away from the treating hospital. On the other hand, when you do get there the care sounds impressive. It’s wonderful that your partner has been so supportive and willing to learn how to assist you too.

Obviously hoping that you don’t need the op but as Nikki65 says it sounds as though you’re mentally preparing yourself for all eventualities. 
Stay strong xx

Thank you for the support Nicola.

I think the biopsies are a positive thing. I would be left wondering if it is cancer cells, until it maybe appeared on my next scan.

Even if my treatment is not 100 percent, it's almost cleared an anal/rectal tumour measuring 11cm. 

If surgery is required, hopefully better margins and less chance of reoccurancre.

Fingers crossed either way.

Ally xx