Hip / back pain

Hi Prettypinkroses 

Sorry you are in pain. I would speak to the gp see if he/she has any advice. My personal advice would be do weight training and build the muscle around to support your hips. I should just say i think weight training is the answer to most things. Ive seen people at my gym who have been written off by their doctor have huge improvements, it takes time and consistency but so worth it. Sending hugs. Xx

Hello Bungle1  thank you so much for your reply. Yes I do do weight training and I use a Pilates reformer which I find super helpful. Also have a dog which I walk regularly so I feel I’ve got good core strength etc on my side now (which I definitely didn’t before). Ordinarily when this pain pops up it’s because I may have done a bit too much walking or have slept funny or something. But this time it’s just different somehow. Can’t put my finger on it but mostly the pain is different and at a whole new level. I suppose it could be something like a trapped nerve added into the mix but just clutching at straws here. Whatever it is it’s not very happy  I just need to rest it and probably give the GP a heads up. I suppose an ordinary xray might the way forward if I can’t wait the two weeks until my scans. 

Thank you for being so kind and listening and responding. Much appreciated . X

Hi PPR,

Really sorry to hear that you’re in such pain. It sounds awful and could as you say be nerve pain. The fact that your scans are coming up very soon is good, but if it’s really unbearable I would go to your GP.

 I have every sympathy with you as I developed awful Lower back and hip pain back in February, after finishing treatment last November. A spinal MRI showed several areas of significant stenosis at the base of my spine with nerve contact. I had never before had any sort of back ache and had always been physically active and fit. It was utterly debilitating and my gp referred me to the pain clinic as an urgent referral. The waiting time is 46 weeks and I am still waiting. I have been paying to go to a private back pain clinic weekly for osteopathic treatment which has helped to take it down a few notches but still far from good. I am also doing specific targeted exercises. In the meantime my GP keeps prescribing painkillers but as they are so strong I’m reluctant to take them regularly. Sorry to go on about me , as this is about you, but just want to say how much I feel for you being in this situation. 

I really hope that you can access a diagnosis for your pain and some effective treatment. If it is nerve pain there are specific medications for that, such as Pregabalin.  I hope you get some help quickly.

Sending hugs xx

Hi,

I'm wonder if you may actually have hip pain from something completely unrelated; I have a bit of arthritis in my hips and have had one replaced just before I was diagnosed (had hip problems from childhood) so I do occasionally get hip pain that I am fairly sure is this, and not related to AC. I am not saying your is arthritis, but just that it's probably nothing sinister, especially if you are being monitored

I have just last week had a check up from oncologist - I am  four years post treatment too - and he said it was extremely unlikely to recur after this amount of time. I think treatment varies from area to area, so I am not sure how your treatment is differing from mine, but I am also being treated privately and I have not had any scans for three years, just the lovely DRE. If anything was going on in your hip, or your bladder, or anywhere else, I am sure something would have shown up by now.

You sound like you are in a lot of pain and I would possibly look at going to see your GP as it might well be something you need different treatment or meds for. If all your scans are clear but you are still suffering, you will end up back there in any case.

I am sorry this all seems a bit garbled, but I do understand those awful feelings when your brain just starts spiralling. Fear of recurrence is very real for us all, but keep telling yourself you are well monitored, and at four years it is unlikely.

I wish you all the very best, please let us know how you get on xx

Hello Mrs Vanilla  I think you’re probably absolutely right, it is mostly likely arthritic pain. Although the hip pain I have is apparently related to the radiation - I think it causes damage to the bones and tissue along that radiation line? It’s just being particularly stubborn and annoying this time. Normally I can be on top of it in no time as I’m really pro active but just can’t seem to knock this one on the head. I’m not really thinking is anything sinister as it would be practically unheard of after 4 years and bone mets are very way down the line in order of mets for our cancer. Just a bit fed up and out of self care options and shouldn’t have googled it    (will I never learn???). 

Sometimes you just get to such a good point and then left field another curve ball arrives. It’s just so annoying. My girls are on half term and I’m just hobbling about and not able to do much. I might call The Marsden tomorrow and just say can we bring the scans forward not because I think it’s sinister but because the scan will also show what my hip is up to and then that might expedite getting it sorted which would be a huge relief! I feel more 95 than 55 right now! 

many thanks for taking the time to reply and the advice, so appreciated x