A week ago I was going to post that I hit the four week post treatment and felt like I had really turned a corner - I was telling everyone and it was so great to be able to give positive news when people asked me.
This week has been a real regression. Bowel movements are horrible again and I’m in pain for hours afterwards - last week I was still having painful movements but the recovery was ok and I wasn’t really feeling pain.
Thursday I was in pain for over eight hours. Today is again awful and I’m at five hours post BM. Yesterday was ok as I didn’t go.
sorry for a moaning post but did anyone else regress? I was so positive about recovery and now it’s all a bit devastating.
Hi AuroraHunter
I found it very 2 steps forward and 1 back and still do now coming up 11 months post. Its like I get to a point where I start thinking that's improved and then it goes a little backwards. My oncologist says its still relatively early days so we carry on. You will get there, just take any wins however small. Sending hugs. Xx
Hi AuroraHunter,
I’m really sorry that you are still having such a painful time. You are absolutely not moaning.
I do think that as Bungle1 says, that it can be a very gradual process with steps both forwards and backwards. I definitely found this, and remember how disappointing it can be to slide back.
On my last appointment in August my Oncologist, like Bungle1’s reiterated that it’s still considered early days and this was at 9 months. This really surprised me. I don’t say this to be dispiriting, but just for context. It’s so easy to think that something is very wrong when it’s actually , although really upsetting, normal. 5 weeks is really early on in recovery.
I do hope that the pain eases and that your team can advise you how best to manage it in the meantime.
Sending hugs xx
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