I had my 3 month scan a few weeks ago and was told the treatment had worked and that the tumour had gone. The consultant showed me a before & after of the Pet scan, where last November there was a 5.5cm tumour and now, its all gone! I do have some scar tissue where the tumour was and the treatment has caused tiny cracks in my pelvis, along with a condition called Oesteopenia, low bone density in the base of my spine.
So altho its brilliant news the cancer has gone, its the side effects that I've now got to contend with...pain in the hips, altered bowel habits, bloating, food intolerances, & worsened restless legs syndrome .
Something else I've noticed and this must happen with a lot of people who've had cancer treatment, that a lot of friends & family think that now you've finished treatment, you're better. When I was diagnosed last November, everyone I knew were sorry & if there was anything they could do, I mustn't hesitate to ask. Then I started treatment and some people did message me or ask how I was getting on but others shied away, then I finished treatment, and it's like nothing has ever happened .Has this happened to you?
Namet, that is just wonderful news - you must be so relieved!
The side effects - oh yes! I have degenerative osteoarthritis in both hips and had a stoma formation due to severe anal stenosis. And sex - what's that?!
But given my diagnosis I am just glad to be here and have a happy and full life, albeit quite different from BC. And there are many forum members who recovered really well and have minimal reminders of what was quite a toxic treatment. I remember seeing a placard in the hospital radiotherapy department - Radiotherapy Saves Lives. I am sure they knew what was to come for some people. But it made me think of the alternative...
I have mentioned before that many people say I look so well. And I do, but they don't see the ongoing problems and know what goes on inside my head. A cancer diagnosis changes us irrevocably and unless someone has been treated for cancer and has experienced the fear, confusion and ongoing worry, they just see us as being back to normal.
But here we all know. So if you need to, share with us, your virtual cancer buddies!
Big hug
Irene xx
That is brilliant news! Congratulations
I hear you regarding the rest. I feel the same. Treatment is just one small part of all this and the recovery is potentially the most difficult part. People don't seem to understand, but why would they? Having not gone through it themselves? It can feel frustrating and a bit like you've been abandoned just when you need the support the most. Especially when left with other longterm issues.
Jenna xx
Hi Namet
That's brilliant news that you have the all clear, so happy for you. Hopefully your side affects will improve over time. I completely understand your last paragraph, people just think you are better now and dissappear. They don't understand that some have physical side affects and there is also the mental toll of it which I think comes after. My nurse said to me cancer may not be a death sentence but it is a life sentence and at the time I was like thanks, but now I get what she meant. Sending hugs. Xx
This is fantastic news Namet , I’m over the moon for you.
There are a few common residual side effects of the treatment, some lessen over time, some are a bit more long term but I’ve come to terms either the fact that this is the small price I’ve paid to be able to carry on living my life, spending time with the people who are important to me & seeing my girls grow & make their own lives.
I think we can all completely relate to what you say about friends, colleagues & even sometimes close family thinking everything is fine, done & over once you’re through treatment. I may have been one of those until I had my own diagnosis! I’ve tried not to take this personally, I think unless you’ve been through it yourself it’s all very surface level if that makes sense, I don’t think it means people have stopped caring, people are grateful you’re through the other side so to speak & I just think it’s something you don’t fully resonate with unless you’ve been through it yourself. Luckily I haven’t had much experience of cancer in my own family but do have a couple of friends that went through treatment prior to me having my own diagnosis & although even after treatment I always asked them how they were doing it never really went much deeper than that. Like Irene has said because we look well people tend to think everything is hunky dory but they don’t realise sometimes the day to day challenges the treatment itself can leave in its wake.
Nicola
Such good news to hear that you’re in remission! Congratulations, all that treatment was definitely worth it! However, I completely get what you’re saying about reactions from friends and family. People I thought would be there for me 100% seemed to disappear whilst others surprised me with their ongoing support.
I finished my treatment in April and the expectation seem to be that I can do everything I did before and I’m ‘all better’ I’m really not anywhere near like I was before and even doing small tasks wipes me out. Pre diagnoses I was always on the go, working full time, going out, visiting people, etc. Now, hanging the washing out is tiring! It’s hard trying to explain to people what your body has been through and that you’re not the same as pre-cancer.
it’s really important, especially with your new diagnoses, that you listen to your body and don’t try and ‘keep up’ You’ve been through a lot and the after/side effects can be really serious. You have to look after yourself and don’t be afraid to ask for help. Being kind to yourself is so important, you’ve been through a lot!
I wish you the best of luck with everything Namet, let us know how you’re getting on xx
Great news on your result.. now you can start your recovery..
Our bodies have been through so much and our immune system is still recovering long after the treatment finishes..
I have terrible wind..im trying to cut out foods that trigger it ..but its everything..I don't get too embarrassed.. I work from home so I have tgat luxury to let it go when I need too.. my joints where aching but I have started doing hip exercises at tge gym and plenty walking which has helped..
My treatment finished 5 month ago and I was given the cancer free news on 3rd June.. im really lucky my close family understands that it's still a long road.. but some friends and colleagues just think I should be back to the before cancer me...some of these friends didnt even pick up the phone during my treatmentto see if i was ok...how I handle it now is smile.. nod and the politely tell them that the new me does things in my own time..at my own pace..some days I can do more than others and that's ok as well..dont let other people's perceptions if how they expect you to feel pressure u.. please use this next phase of your just to try to have as little stress as possible.. stay positive and I hope you start to feel better a little each day xx
Squeak
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