3 month post treatment scan

Hi Squeak, 

I think the fear and worry is totally understandable. After getting yourself through the hardship of the treatment, of course you're going to be anxious for the result... can imagine it will feel like a very long 3 weeks. Fingers crossed for you! Is there a nurse or your oncologist perhaps that you can discuss these symptoms with? Xx

Thank you for your kind words..

I've spoke to gp who i don't think knew if it was normal or not.. I will speak to oncologist is 3 weeks.. hopefully it will pass quick x 

Hello Squeak,

Yes, I agree this is a nerve-wracking time but try to keep reminding yourself that this is a highly effective treatment, and even if it doesn't show your tumour has gone at this scan, don't worry - it does sometimes take until the six-month scan to show clear. That has happened to many of us here, so try not to stress this too much right now and stay focused on looking after yourself.

I was hyper-sensitive about everything, the slightest twinge, a small itch and I immediately jumped to 'Oh no, it's back!' 

Your body is still healing and forming scar tissue and it takes ages to recover, so the symptoms you have could well just be part of that. If you are really concerned, you could ask your GP to have a look and just make sure nothing is pushing out.

I had discharge for quite a while following treatment and I think that's quite a common symptom from what I have read here.

Good luck for scans on Monday. Stick with this forum, there are some lovely people here who will help and support you  as you recover.

xxx

Hi Squeak

The waiting is the worst and what you are feeling is totally normal, we all want that 3 month scan to show its gone. Like Mrs Vanilla has said the treatment is highly successful so hopefully you will get the all clear. Have everything crossed for you. Sending hugs. Xx

Hi Squeak. ,

The anxiety surrounding scans & results (scanxiety) especially in those early days is so traumatic. The way you’re feeling is something all of us that are post treatment can completely sympathise with I’m sure. Regarding the symptoms you’re experiencing it may be something as simple as a bout of inflammation, I had this on & off for quite some time after my treatment. Just to put your mind at rest maybe give your oncologist or if you have one your specialist nurse a quick call. 

Nicola 

Hello Squeak

Your experience mirrors most of us coming up to every single scan.  I develop all these weird aches and pains and am utterly convinced that the cancer has returned and yet all my scans have been clear.  The first scan is definitely the worst though, the good thing (if you can call it that) is that you are being scanned tomorrow and if there is anything at all that they are not happy about they will be onto it straight away.  I am sorry you are having to wait three weeks for the results, that is quite a long time and must be nerve-wracking, no wonder you are on edge.

With regards to the discharge I have this too although I think mine is from my uretha - and I am over three years out.  I now wear panty liners daily, I know it is not leakage, it isn't offensive at all and after all this time I think mine is just one of the side effects of the radiotherapy.

I am keeping everything crossed that everything is just fine, Squeak.

Big hug

Irene xx

Thank you all for your replies..

This weekend has been a right off for me as so down..

I've tried to have sex a few time with my hubby but it's so painful.. I feel so bad for him as he is so patient..I even told him today that I would understand if he found someone else..we have been together 40 years.. I don't know why I'm saying this

I can feel little lumps down below.. Im Sure it's scar tissue off where I have healed but looking at internet it's freaking me out think that hpv is is now forming warts after all these years.. 

Sorry for the rant..feel like I have no one other than you guys to talk about my fears 

Xx

Awwww, Squeak.... I really feel for you on this. I completely lost any sex drive over the past couple of years. Although I hadn't yet had a diagnosis, I was acutely aware of something being wrong down there and just lost all confidence. I'm probably peri menopausal also (44). I ended a relationship largely because of this and now have that person in my life as a close 'friend', thankfully... he is going to be taking me to all my Friday treatment days.

You certainly shouldn't feel under any pressure to be intimate in that way x and I'm glad your husband is patient. I'm sure it's the last thing he wants to find someone else! Be patient with yourself also. Trying to force it will only make it more difficult for you to get back to in your own time xx

Also, I had the HPV warts over the last year. I went to have cryo treatment at sexual health clinic a few times... makes me a bit annoyed tbh, that two and two wasn't put together, because I did ask, 'could this be linked?' and was reassured no, by more than one health professional. Also bearing in mind that as I said, I haven't been sexually active over the past couple of years, so the HPV must have been dormant in my body since at least a couple years ago when I had a positive smear. So many missed opportunities for connecting the dots  

Have you mentions the little lumps to your docs? They may or may not be warts. Worth getting checked out xx

Hi.. didn't have the lumps before my treatment started..they have just appeared since i finished treatment.. I'm going to mention it to oncologist..

I saw a gynaecology doctor and had a full check down there in Sept and everything was fine.. but going to ask the oncologist xx

I feel so embarrassed and ashamed.. ive been with my partner for decades..im 58 and too old to be worrying about this xx