Done now for the wait.

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Hi,

It’s been a while since I have been on here. Sorry for being so absent when you have all been so busy.

My treatment ended mid February, one week after my 61st birthday. Strangely enough I didn’t do anything to celebrate my big day. My day out was to the radiology department at The Velindre Cancer Centre, an extremely painful poo and an early night with fatigue. Such fun!

Being a man, as opposed to a women who is giving birth without pain relief, I wanted to cry every time I gave birth on the toilet. i was not proud and took everything that was offered to me, codeine, morphine, four different types of creams and gels.

I would love to know why, when I was in so much pain I seemed to want to go to the toilet so much more often than when I was not in pain. The universe has a weird sense of humour.

My pain has now pretty much gone, just some very minor residual pain remaining.

The fatigue has also pretty much gone, it just occasionally rears it’s ugly head.

I still have painful finger tips and weakness in my hands. I wake up every morning with joint and muscle pain and I often cannot recall words I want to use during conversations.

I am now waiting on my MRI in two months time.

In terms of empathy. I now understand why dogs occasionally scoot on the carpet. I haven’t been caught doing this, yet, but I wouldn’t discount it Rofl.

  • Hello LCraig

    What a wonderful post to wake up to, it made me laugh out loud!  Your descriptions of life after treatment are spot-on and we can certainly empathise with the after effects.  Certainly three years down the line I have joint pain still and get very stiff; the fatigue is ongoing and I try to get 9-10 hours sleep a night (and I need it).  I hope the pain in your hands and painful fingertips wears off, it is still very early days for you and your recovery has been remarkable.  Thank you for returning and posting your update which will give much hope to those who are going through what you did only a short time ago.

    Scoot on the carpet - love it!!

    Irene xx

  • Hi LCraig 

    Well done on getting through it. Now rest, recover and start getting back to life. Xx

  • Your post made me smile, but I am so sorry to hear about the painful finger tips and weakness in your hands. I hope these symptoms fade as you get further away from treatment!

    I'm just finishing week 5 of treatment and have a good appreciation of painful poos, but am bracing myself for what's ahead. It's quite a treatment, isn't it? 

    Wishing you all the best with the MRI and with your continued recovery! Xx

  • Hi  ,

    Well done for getting to this stage in your treatment. The treatment can be gruelling but my experience is that once you start to heal you get better quite quickly. Not that it feels like that at the time.

    You will get there soon enough and then this will be another life experience story to tell at cocktail parties. JoyJoy

  • Hi  ,

    This post made me chuckle In all seriousness though you’re doing great by the sounds of things! I’m almost 7 years post treatment & not sure how much of my ongoing joint/muscle pain is a consequence of the treatment or just down to age & some osteoarthritis, I can’t remember this pain pre-diagnosis although that feels like a lifetime ago now! Hopefully the pain & weakness in your hands will improve over time along with the brain fog, being a woman of a certain age I’ve learned to live with the brain fog, it kind of rolled on from my first pregnancy at 24 to my second 13 years later then onto menopause Joy it’s now a way of life. 

    Thanks so much for the update, posts like this really do help those that are facing the start or those in the midst of their treatment. 

    Nicola 

    P.S., I would try & refrain from scooting on the carpet, I can imagine it’ll burn!! Joy

  • Hi LCraig,

    It’s good to hear from you further down the line and to know that the pain and fatigue have improved so much. I remember well that you really went through it so it’s always so encouraging for others to know that it really does get better.

    Im sorry about the fingers and hands and really hope that this improves for you.

    You have managed to retain your humour throughout this journey even at the darkest times, which is admirable!

    Hope you keep healing up and that the brain fog lifts.Everything crossed for your 12 week scan too.

    xx