Worried

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Hi I was diagnosed in 2021 finished treatment September 21 did only have higher radiotherapy as as after 2days chemo tablet didn't agre with me was told ned at 3 months and ned since   saw my oncologist in February he said every was still feeling fine not had problems with diarrhoea only thing as been back problems so don't get about like I did before treatment  anyway Saturday  really bad cramps and bad diarrhoea which really made me feel I'll was on toilet for over an hour managed to eventually get to my phone to call son who came round pain seem to feel milder so told him to go home then felt like I need toilet and noticed I was passing blood this happend 5 times just wondered if anyone else as had this happen 

  • Hi Pelma,

    That sounds like a very distressing and frightening experience. I hope that you are feeling better and have not had any further episodes since Saturday. 
    Bleeding can be down to a number of things, from piles to fissures but given your history of anal cancer you really must tell your doctor and get checked out.

    I know it can be hard to get to see a doctor but do make sure you tell the receptionist that you have a history of cancer and hopefully you will be seen urgently. 

    Wishing you well and do let us know how you get on 

    xc

  • Hi pelma

    Sorry you are having problems. I had this once but it wasn't long after treatment and the hospital said it was fine. You are much further down the line than me so I would definitely ring the hospital and see what they say for peace of mind if nothing else. Sending hugs. Xx

  • Hi  ,

    I’m so sorry you’ve not been feeling well. Regardless of how far out of treatment we are situations such as this if they occur are always really concerning & I appreciate how anxious you must be feeling. Radiotherapy for our particular diagnosis completely alters the skin of the anal/rectal area both externally and internally forever & it could be the case that you’ve got a tear or a fissure, you’ve possibly had a bit of an upset tummy & the fact that you’ve had quite severe diarrhoea could have caused this. If this has continued I would contact your treatment team to see if they will offer you an appointment to get checked out, my team always made it clear I could contact them at any time if I had any concerns which for me was really reassuring. 

    Let us know how you’re doing. 

    Nicola 

  • Thank you nikki for your reply I did phone 111 and thy got me in to see doctor at the emergency walk in on Sunday but he then got me appointment at new hospital over here same day the doctor I seen did a digital exam said there was still blood and said it could bee radiation damage or piles or recurrence but have put for emergency colonoscopy with in next 2 or 3 weeks time 

  • Thanks you bungle for your reply yesi got to see doctor at emergency walk in who then got me appointment at new hospital over here same day he did digital exam couldn't feel anything but did say it could be radiation damage or piles or recurrence so got to have colonoscopy in the 2 or 3 weeks time to see what it maybe not looking forward to that as last time I had one before starting treatment was so painful but it's got to been done will let you all know what how I get on x

  • Thanks peb24 will let you know how I get on x

  • Hi Pelma,

    It’s good that you are going to be properly checked out. I can understand you not looking forward to it of course.Keeping everything crossed for you x

  • Hello Pelma

    I am really sorry that you have been having these problems.  I have intermittent bleeding (three years since treatment) if I have had a hard stool, diarrhoea, strained at all, anything can set it off.  I am hoping that this is what is happening to you.  The latest was last week at my checkup when the oncologist tried to do a DRE, she had difficulty and I was dabbing away blood as I got dressed.

    I .hope you get your colonoscopy appointment very soon and they find everything is well.

    Please let us know how you get on, we are all thinking of you.

    Irene xx

  • Hi again  , thanks for the update. It sounds as though everyone you’ve seen are doing a great job & being thorough in finding the cause of the bleeding. I would have blood present if I had even the slightest difficult bowel movement for some time after my treatment had finished although it would stop straight away. I would mention this at each appointment with both my oncologist & surgeon & both would seem pretty unconcerned & went on to explain about how the radiation changes the structure of your skin & the blood vessels etc., but that didn’t stop the panic from rising ea ch time it happened! 

    I hope that you’re not waiting too long for your colonoscopy appointment & the results are able to put your mind to rest. 

    Keep us updated on how you’re doing. I’ll be thinking of you. 

    Nicola 

  • Thanks irene for your reply just to let you all know I had my colonoscopy today and glad to say everything was fine no sign of eny recurrence am so relieved and want to thank you all for your support dont know what I do without this group