What I can see?

I had a feeling that this would be the case Angie SE , it’s shocking that you’re going to have to wait so long for an appointment though. 

Nicola 

Hey Nikki  - bad luck for me but fortunately I have access to my pension and have started  the contact with a private urogynaecology specialist consultant at a hospital near me and have the support of a GP at my surgery x  email and phone call (answerphone) Fridays and chasing from Monday!

it’s a tragedy that emergency clinics for us with this type of issue don’t have funding! How many women are like me and have to get on with it straight after the side effects of chemo radio therapy! I feel almost broken but not quite xxx 

Night and sorry about the rant x 

Angie xx

Glad you found out what was wrong and were reassured - the thing about pelvic floor exercises is you can do them anywhere at any time, it is remembering to do them that is the difficult part!

Irene xx

The reminders for meds have changed to exercise reminders, but getting sore.

I wonder if others have had this experience as I thought it was treatment related but both radio and anal cancer nurses not able to even look or confirm which I felt very upset about sadly. 
I feel when treatment is done that’s it and understand there is a long queue of others but I felt so grateful and happy I was not raw anymore then this has bashed confidence completely again x 

Will update when any news for others to know if nothing else x 

Keep smiling and hugs x 

Update just in case anyone else had had this as this Forum has informed me so much I wanted to share.

- I had a GP referral and examination - very stressful but confirmed prolapsed and visible cervix.  A day later  I click on the booking linenk and find out the Urogyneacology appt is  Next July 2025.

Luckily I can go private for a Consultant opinion and plan of action but this has had its hold ups due to one being ill, another too busy etc..... so next Thursday is the appt.

- In the meantime - have had a chat with my friends daugheter an A&E nurse who said get up to A&E and sommeone will see you!  So we toddled off and after about 11 people looking and 4 Drs and trainees they tell me I have Lichen Sclerosis in my Vagina.  

I have literally been updating and asking for help, and if treatment related, with the Specialist Nurses and neither of the two I know think it is related.   I know we shouldn't google, and I know it doesn't change anything but it is often related but very few records of instances - no wonder - hard to get a diagnosis and no one wants to say yes its related and I have no idea why.

I am working on pelvic floor exercises - I also saw an amazing Osteopath who showed me what to do!  Awaiting a Urogynea Consultant being better for next Thursday and crossing my fingers I can resume my mending.

The combination of Radio therapy and Lichen Stenosis can all shrink the Vagina and cause a change in what you see and feel. 

On the upside its still nice weather - my hubby is an amazing support and I can walk further than the end of the garden at last....x

Hi Angie SE 

My niece has Lichen Sclerosis, if you want any information/advice please drop me a message and I'll ask my sister to pass on anything useful.

Thanks Georgie - I have a consultant meeting this week so will see what the 3rd person says one said prolapsed cervix, another said no you have LS x if it is I will be asking for sure x

Hi Irene,

I don’t know if you are aware of the NHS App called ‘Squeeze’.  My oncologist suggested it and the phone reminds you to do them.  It is so easy to use too.  
Leslie

Thank you Leslie found it x the osteopath did mention a name but was in a fog at the time x def worth seeing someone who knows xxx thank you x 

Wishing you good luck for your next appointment Angie SE , hoping you get some concrete answers then at least you’ll be able to get a plan moving forward. 

Nicola