Had enough

Hi Kimj I am so sorry to hear you are struggling so much. I also had a huge open wound (7cm deep….) on my bum after my surgical wound for anal cancer dehisced so I really sympathise with you. I didn’t find morphine was very good but oxycodone was excellent - I was sent home with some from hospital after surgery but my GP prescribed more once I had run out. I think if the pain can be more under control it might help your mood - I felt incredibly low when I was only able to lie on my side and hardly spend any time with my family but I am feeling almost normal now. My surgery was at the end of July. Please do speak to Samaritans if you are feeling so low or Macmillan offer six free counselling sessions if you would like to try and access those? Sending you all my best wishes that you start to heal and feel much better asap.

Kirsty x

Hi sorry took so long to respond! I’m still struggling the recovery is the worst from radiotherapy it burnt all my skin on my bum an left the skin really hard an swollen! I’ve asked for oxycodone but not heard back yet!! My mental health is non existent I’ve talked to people but nothing seems to help x

Kim,

I was burned from my pubic bone to the top of my bottom. I remember lying on the bathroom floor screaming having tried to wee. I had District Nurses every day, taking photos & each one staring at my ladyship saying they had never seen anything like it. They put burns crams on, but I was eventually admitted to hospital suffering severe burns. 

5 years on, it seems like a distant nightmare. Just hang on in there. You will get better. There is a life to be lived out there! 

Very best wishes, you can do it!

Pam xx

Hi the burning has gone it’s what it’s left is the problem it’s horrendous it’s also opened a hole up where the cancer was! I’m finding it really hard to stay positive at the moment the pain is unbearable xx

• Hi Kim firstly sending BIG hugs to you! I hope you have managed to resolve the pain medication by now. Me too the pain the discomfort the burning the PAIN oh dear god it’s just awful for some of us and yet some sail through unfortunately I definitely wasn’t one of the lucky ones they couldn’t even at one point when I was admitted (again) for burns and infection find my anus to swob in hospital I had many photos taken, the poor staff were in total shock bless them some young student nurse I really felt for her but they were so caring but I could see the fear in their faces at the state I was in, infected and burned all down below with prolapsed bowel too!!! The pain until they changed me from morphine to Oxycodone, slow release tablets and Oxycodone liquid form every hour game changer!! High dose get on it quick would be my advice iallowed me to sleep which is extremely important for recovery! They need to make sure all your medication etc are compatible if that’s the correct word!! Honestly ring your oncologist or cancer specialisturse or your GP asap today which ever helps the most and request more pain relief to get you through this!!! You need more then it’s manageable. Thinking of you take care remember this will pass  xxx