Hi I has anal cancer which went into remission in November 2021. Since then I have had issues with leakages and bowel sometimes feeling as though not emptied from radiation damage but was managing. They have now found cancer which is residue from the anal cancer on back of rectumnear lower spine. They said they can operate but as complicated will be newcastle. However despite numerous calls not getting anywhere as when they are going to remove it. Now getting pain in my coccyx especially on a morning which eases when I go to the toilet but now finding I am needing to to go alot during the day having leakages and having to massage anal area to go it's then mushy and sticky with weird smell and where anal cancer was seems to be a space that takes me ages to wipe clean. Has anyone else gone through this
Hi Sinbad1965 ,
I’m really sorry that you’re facing another battle with this god awful disease!
Although I don’t have experience of your situation I didn’t want your post to go unanswered & replying will boost your post back to the top.
You've mentioned that the surgery you’ll be having will be done in Newcastle, will this be at the RVI? I’ve been under the colorectal team there since my diagnosis & have always found them really good where information & communication etc., is concerned. Mr surgeon there is Mr Coyne & if I have any concerns I just give his secretary a call & she’ll email him & usually gets straight back to me. Haven’t they given you even an idea of when this surgery will take place? If you haven’t already done so I would make them aware of your worsening symptoms & don’t give up until you have something concrete in place.
Sorry I couldn’t be more helpful.
Nicola
Hi again Sinbad1965 ,
I remember visiting my GP shortly after my diagnosis & when I mentioned I was having surgery she asked who I’d been referred to, I told her it was Mr Coyne & she said he was a registrar when she was in medical school & said I was in very safe hands as he was at the top of his game. He’s always been great each time I’ve seen him, explaining things thoroughly & is very aware of the enormity of the situation from the patients point of view, which can’t always be said of some Dr’s, I think many are so used to dealing with chronic illness that sometimes any bedside manner or sympathy for the patients situation goes a bit by the wayside.
Nicola
Sinbad1965 check your messages, I hope this might help you get through to someone a little quicker.
Nicola
