Hi. New to this. I have recently been diagnosed and start my treatment for chemoradiotherapy in 4 weeks time. I havent really came to terms with it yet and it still doesnt feel real. I have hundreds of questions to ask, but I will start with this one...... I am just wondering if anyone had numb/tingly butt cheek, right down leg and into thier foot. My left side from butt cheek is really numb/tingly and feels huge. The right foot is just starting to do the same. Was wondering if I should be worried or is it bcoz the cancerous cell is leaning on a nerve. Hope someone can help.
Hi cheesecake37,
Firstly welcome to the Macmillan online community although I’m really sorry that you’ve had the need to find us.
Where you are right now really is the worst place! It’s really is a scary & bewildering place but you’re no longer alone, there are many of us here that have been in your position & can offer a sympathetic ear & we’re armed with lots of helpful tips & advice on getting through this. .
Getting your head around something like a cancer diagnosis can take time. When I was diagnosed, a little over 4 years ago, like you’ve described, it didn’t feel real, it felt as though I was watching it happen to someone else. This is where this forum helped me. Like you I had a million & one questions all of which were answered honestly but with total empathy. It was good to talk to others that were or had been in a similar position to myself. The support I received was amazing & I even found a lovely lady that began treatment at the same time as me & even though we were opposite ends of the country we became treatment buddies & were in daily contact.
On to your question, it sounds to me as though this may be nerve related. Have you been assigned a specialist nurse? Some people are some aren’t. If so I’d give her/him a call just to get some professional advice as they may be able to give you some ideas on how you might be able to relieve it a bit. If you don’t have a specialist nurse then I’d give your treating team or consultant a call & ask their advice as with it possibly being 4 weeks until your treatment begins you really don’t want to be in this kind of discomfort for that length of time if there’s something that may alleviate it. If you manage to speak to someone please let us know how you get on.
Nicola
