Biopsy / PET scan. Results

So sorry that you’ve had this news.  Even when you think that’s what they’re going to tell you, it’s a shock when you actually hear it.  I had an APR in December 2017 after my AC came back.   If there’s anything you want to ask just let me know.

Thanks for that.  Ive sent you a friend request to allow us to chat. 

Cheers 

Ian xx in

Thanks Ian. I’ve accepted that.  Happy to help with any questions.

Caroline

Sorry to hear this news Ian but good news there’s no spread. I remember reading about irrigation when you have a stomach and how beneficial that can be I read that it means this massively helps management following an APR. Hope the op is as soon as possible. Please keep us posted x

A stoma not stomach I meant! 

So pleased to hear it hadn’t spread. I think you had pretty much prepared yourself for the stoma already too. You really are dealing with this well. 
I suppose the operation will also deal with the other post treatment problems you’ve been putting up with too.
Hoping CV19 doesn’t cause any more problems,

xx

Cheers Terry, I'm trying to stay positive as it will be finally a cure.

Looming forward to no more pain dome time in the future too

:) x

Just to update you. I was in so much pain after my last biopsy that I was examined and found to have a large abscess near the tumor. 

They took me in, drained it, and gave me a double Stoma to help the area heal up. 

Ive been warned a few times that the infection could stop any chance of an APR.

Ive been in hospital 8 days,  hope to go home Tues 14th now.

They will organise another MRI  scan to.see how the area looks.

Its then I will know if there is anything that can be done. 

Then we content with COVID-19 which is touring every Intensive care unit it seems. This is making any "Big ops" impossible as very I'll people cant cope with it.

I honestly didn't see things going this way. I thought the APR was the worst outcome in effect. It might still be but the surgeons are all clear it just might not be possible to do one. 

Sorry to be so blue about this one. 

I hope you and yours are safe. 

Ian x

Oh Ian, I'm sorry to hear you're going through this rubbish. I hope they can get things sorted for you and you can get home. It must be a particularly strange time to be in hospital with everything going on and definitely not an added worry you need.

I'm keeping everything crossed for you that you get positive news after the MRI and a clear way forward. 

Stay strong, you've got this! 

Deb x 

Cheers Deb

Yeah it's a bizarre time to be in hospital. 

No visitors allowed. 

To make things worse major operations are on stop because so many are catching COVID-19  and have no chance to get over it

It's probably the worst outcome during the worst tine really. 

All my friends and family are really supportive.

Ian x