3rd biopsy results

FormerMember
FormerMember
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Hi everyone. Sorry I've not been posting but theres been a few reasons for this. I've found talking about my HPV AIN grade 3 really difficult. And even reading about others diagnosis very difficult. Even though theres a lot of positivity. I've had a 3rd biopsies and this I'm really happy to say has come back clear . So now set up with a future Pathyway C/P. Whilst all this was going on I've been struggling with Kidney stones & been in & out of hospital , where a stent was fitted but caused me do much problems & was left 3 months in total agony, bedridden quite a lot through this . In happy to say that I demanded the stent was removed & after much discussion , it was. Still have fragmented stones in my kidney & now find i have a stone in the other kidney. Trying to to keep healthy & positive . I've just had a MRI to check that all is clear with the cancer & not gone to anywhere else , so waiting on those results . No news is good news I. hoping . 

Still feeling bouts of exhaustion & not sure why ? Get tired quite a lot & usually for no reason. I'm putting it down to the trauma I feel I've been through for the last 18months , but still grateful that I've had positive news . In awe of those here ,& everywhere that have to go through any cancer diagnosis. One thing that really hit me was how vulnrable I felt for a long time & how awful it must be for those that dont have family support.  A big thank you to My GP , who's amazingly patient & the Oncologist team at DCH,  along with Bournemouth Hosp & where I had the last most recent biopsy.  Thank you to people on here that really tried to help soothe my fears when first diagnosed.  I am really grateful to you.  I have just had my first HPV vaccination, and was really unaware that you could even have that at my age?  as I was told it can be of benefit - fingers & toes  crossed . Good luck to everyone here that is struggling or going through cancer Hell. & Thank you to all who have been an incredible help & support. xxx 

  • FormerMember
    FormerMember

    Apologies its taken so long for anyone to reply. We’re normally pretty good at getting back to people quickly so not sure what happened here?

    Reading your post I’m not surprised you’re feeling exhausted. You’ve not only been through the physical and mental trauma of cancer, and the ongoing worry i.e. check-ups, scans and biopsies, but also other medical complications.

    The treatment for anal cancer is short but the recovery is long. I’m personally now realising this. I’m 10 months post treatment, living life as normal but still getting used to my ‘new normal’ and the lingering side effects. Chemo-radiation is strong stuff and us women are impatient, lots to be getting with however, we need to give ourselves time and try to patient whilst our bodies heal and adjust. 

    We all try to be strong and positive but sometimes its hard just doing that and we have to let our guard down and just feel how we want to. I have 3 kids so regularly put on front on for them but sometimes it was exhausting and I’d have to take a day out to retreat and do nothing.

    You’re right about feeling vulnerable, I often felt like this and was so appreciative that I had a husband, family and friends to rally around and support me and the whole family. There are many people out there that are sadly less fortunate.

    Its interesting that you’ve had the HPV immunisation. I thought it was something that was only effective if done prior to becoming sexually active. Clearly not and its good to hear this preventative measure can be taken.

    I hope you get positive results from your MRI scan.

    Let us know how you get on and please don’t hesitate about coming on here. This really is the only place to come to connect with people who really understand.

    Sarah x

  • FormerMember
    FormerMember in reply to FormerMember

    thank you . you're so right. I too was surprised to learn that I could still have the vaccination. Although assured it can be helpful. I'm due the 2nd one next week. I've still not heard back from MRI results,  so hoping no news is good news...even though I know that's not always the case & it's possible that they're so back logged,  as I know they only meet weekly to discuss results .. . Thank you for your kind words . About the Vacination....I'm a bit miffed why I didn't have it years ago if its helpful? was it around then ? wish I'd known then rather than now.... will let you know results when I get them x thanks again & stay well x 

  • FormerMember
    FormerMember in reply to FormerMember

    Its very frustrating  cancers that are HPV driven can be prevented. I was at secondary school in the 1980’s they didn’t immunise against HPV then, I think it came in around 2005/6. I’ll make sure my daughter is immunised though! HPV immunisation will also be available for secondary school boys soon. I still don’t know if my cancer was caused by HPV. Something I must raise at my next appointment.