An update

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Hi,

I first came on in January after my initial diagnosis of anal cancer. I had all my scans done in early February and was about ten days off starting my chemo and radiotherapy when a colorectal surgeon called me into hospital to say he was going to surgically remove my ac. This was done in the 27/3/26. The pain was so bad I was screaming into a towel for a week after. I thought that was end of it but the oncologist said to me on Wednesday that I still need to have Chemoradiation as originally planned.

They thought I had grade one but when they got inside me it was bigger than they had realised. Could this be because it took almost three months after diagnosis for them to start treatment? She said it’s a grade two, possibly a grade three so they want to treat my lymph nodes. This is due to start 16/6/26. I have then got to go to Bart’s hospital to have laser treatment on some pre cancerous cells that they have found. Any ideas what this entail's?

Bungle1 2 months ago

Hi JustSue it sounds like you have really been through it. I was originally told stage 1 and probably just surgery but then they changed their minds after scan results and i know how that made me feel so to actually have surgery and then be told must have been gutting for you. There is a lady on here who had surgery and then chemoradiation. Not sure about the laser, I had precancerous cells removed years ago I assume by a laser and that was absolutely fine but not in my bum. Good luck for the 16th. Sending hugs. Xx

JustSue 2 months ago in reply to Bungle1

Yes I am gutted but I think they are just taking the “belt and braces” approach. I think I may have gone through the five weeks of treatment and still needed more anyway. Thank you, not long to wait at least x

Irene75359 2 months ago

Hello JustSue

You really have been through the mill already, and then to find out that the chemo/radiotherapy still has to go ahead must be such a disappointment. In fact what has happened to you bears out a conversation I had with my oncologist at my last check up - I asked why surgery wasn't a first option and she said that a small tumour can turn out to be quite invasive and surgery can be complex and affect other organs and their function. I am not a medic, but I am assuming that is what has happened to you.

That said, I would have thought that the chemo/radiotherapy would also treat the pre cancerous cells unless they are in a different place that isn't in the radiotherapy plan. But it does sound as though your treating team are being proactive in your treatment; I am sorry I have no experience of laser treatment.

Will be thinking of you on 16th and hoping everything gets going without any problems.

Big hug

Irene xx

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