Little update

Hi Michelle F6eb802 Well done on getting through treatment. Try not to worry about your scan results, the 6 month one is the important one as the treatment carries on working for a while after you have completed it. Some people on here have found the FOD map diet helpful for toilet issues. Things will hopefully improve for you in time it's still early days in your recovery. Sending hugs. X

Thank you x

Hi Michelle,

It can take quite a long time for your body to recover so try to just take things gradually and you'll get there. I have read here about people using period pants just as a bit of extra security, and it might be worthwhile looking into the cards you can get to show in shops etc which allows you to use staff loos if you need to. Macmillan do them if you just Google Macmillan toilet card, and the RADAR people also do one which gives access to public disabled loos which need a RADAR key. 

As Bungle1 says, the treatment carries on working after it has finished and the six month scan often gives a more clear picture of how you are doing, so in the meantime carry on looking after yourself and hopefully things will have settled by then - and you can have a rant here if you need to xxx

Hi Michelle F6eb802 , as Bungle1 has said it’s not uncommon for there not to have been a complete response to treatment at that 3 month mark, hopefully by the 6 month mark things will have resolved. 

The fatigue lasted quite a while for me, it just very gradually got a bit less where I would have a couple of good days then a day where I’d have to do absolutely nothing, then the day after I’d feel good to go again & the gaps between these down days just got longer & longer until I felt I was getting back to normal. 

Regarding the toilet issues try a very low residue diet often described as a ‘white’ diet, white bread, white potatoes, white rice, white fish, chicken & so on or as suggested try the FODMAP diet.

I hope things begin to improve soon.

Nicola 

Hi lovely. Try not to worry. It takes up to 2 years to heat. I was told. I’m nearly a year on since finishing treatment and can’still get caught out going to the toilet . I had swelling Odema on my scans but they were not at all concerned about that. It’s very early days yet . Keeping everything crossed for you. Warm wishes Anne