18 months post treatment

Hi AW3 ,

I’m really sorry that you’ve got ongoing issues at the moment, all of which sound pretty painful in their own right. Thankfully I’ve never had a fistula although I had a suspected fissure early on in my recovery, those little blighters can sting like mad can’t they?

I healed quite well & pretty quickly after my side effects had peaked but realise not everyone is so lucky. As you’re only 18 months post treatment I would maybe ask for an appointment with your treating team be that your oncologist or colorectal surgeon (whichever is leading your surveillance at the moment) & see if they have any suggestions on managing these painful issues. 

Don’t ever feel like you’re a hypochondriac, your body has really been through the mill with this treatment & recovery is rarely linear, we all suffer bumps in the road especially early on & these are often things that need medically managing so don’t ever worry about bothering your GP or treating team, that’s what they’re there for. 

I hope you get some relief soon. 

Nicola 

Hello AW3 

Personally, I haven't.  But I wouldn't be at all surprised, some people (I am one) have skin that is super-sensitive and fragile after treatment in the whole general area, not just round the anus.  I am four years out of treatment and have to have cushions strategically placed round the house as it hurts to sit down.  I am really sorry you are going through this and I wouldn't worry about suggesting to your GP what it might be.  Not all GPs are totally familiar with the side effects of radiotherapy in the area and you may well need a referral to a colorectal surgeon to be really checked out, or your oncologist to take a look. 

Better still, do you have a number to call your treating team if you have any concerns between appointments?  That may be better than going back to your GP as they will be much more familiar with ongoing side effects.

I do hope you get this sorted out, you are entitled to feel fed up.  Please let us know how you get on.

Big hug

Irene xx

Hi AW3

sorry to hear you might be going through this.

yes unfortunately I have and have now had multiple courses of antibiotics since finishing treatment (Nov 25) it’s super hard to deal with as they’re complicated things especially if you’ve had treatment! The colorectal surgeons have not been too successful with mine and so have had two EUA but not yet managed to resolve the problem. It’s frustrating and I can sympathise with feeling fed up with ongoing issues following treatment. I hope that you were able to see the GP and get a referral if needed.
Take care

Nell