Good morning
Its been 2 years since i finished treatment and over the last 2 weeks i have had a skin flare up in the area which is very bad. I have had minor skin things before - some itching, some sores - but this is particluarly severe. The best way i can describe it is what the skin on my genitals was like during treatment. Inflamed. Itchy. Broken down in parts. I have a gp appointment on thursday and plan to ring my team today but was just looking for unity and validation that this can happen.
My scans this january were all clear.
Thanks so much.
Hello Feather 653
That sounds really painful, and it has been mentioned on here a couple of times. I think (but your team will confirm) that it is one of the late effects of radiotherapy; not everyone gets this. Others (I am one) have ongoing tenderness with extremely fragile skin in the area, so much so that I keep a supply of cushions around the house to make me more comfortable when I sit.
But I think you are right to follow this up, having broken skin similar to during treatment is a severe reaction and hopefully your team will be able to help. Please let us know how you get on.
Irene xx
Hi Feather 653 , I’m almost 8 years post treatment & my skin still gets pretty irritated sometimes. It generally gets a bit itchy & rashy & stings when I go to the loo although I don’t think it completely breaks down as you’ve described. I’ve found I can’t use any of the toilet papers with even the slightest of scents in as they can cause a flare & I still only wash with aquamax cream as anything else, even the gentlest of washes causes irritation. I remember my colorectal surgeon saying the skin that’s been radiated will never go back to how it was, that it would always be akin to baby’s skin & I would probably intermittently suffer from something similar to bouts of nappy rash. I was told to use sudocrem which usually works within a couple of applications.
I hope that helps reassure you a little & I hope your GP appointment goes well on Thursday.
Nicola
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