Hi everyone just an update after starting treatments yesterday

Dee62 1 day ago

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So I started chemo and radio yesterday, chemo was injected through a syringe it was blue and I’m sure they said it was mytomycin and today I’ve started my tablets which are Capecitabibe 500mg 3 tablets twice daily so far so good

I have now had my second round of radiotherapy this morning and even after this and the chemotherapy I’m feeling surprisingly well, I know it’s early days and it’s going to get a lot tougher I am preparing myself for that

The one thing I have noticed is I have a very sore roof in my mouth I think it’s the tablets because when I initially woke up my mouth felt ok it’s once I’d taken tablets but I’m taking anti sickness for another 4 days, I’m also on steroids last dose tomorrow so a bit unsure which ones it is at the moment has any of you had this problem I’ve tried Bonjela and that’s not really helping

The other thing is stomach ache not bad but what I’m now worried about is I have not opened my bowel at all so now worried that I maybe constipated, I will speak to radio team in the morning if I still have not had a movement but apart from those issues I’m doing well

hope all going well for you all

Denise xxx

PEB24 23 hours ago

Hello Dee62,

It can be a relief to finally get started after all the scans, tests and waiting. Well done so far, and sounds like you’re coping well.

On my first day I was given a mouthwash to use in case of sore mouth, so it would seem to be a common side effect. I didn’t need it and it’s still in the cupboard so had a look- it’s Benzydamine Hydrochloride 0.15% w/v mouthwash.

Hopefully your team can supply you with some.
I was also given stool softeners to take throughout- ducosate sodium so may be worth asking for these too.

Good luck with your treatments and very much hope that everything goes well.

Sending hugs xx

Mrs Vanilla 20 hours ago

Hi Dee,

Sounds like you are getting on really well so far. Keep talking to the radiotherapists, they are the people who will monitor you and supply any creams etc that you need. Like PEB says, sore mouths are a known side effect of the chemo, so they'll have something to help you out, for sure.

There are quite a few different things you can be given for constipation so again mention to the staff and they will help. I found eating fruit helpful but veg upset my stomach a little, so you probably need to do some gentle experimentation with your diet and finding things you like to eat and that will help.

Stay in touch, and all the best xx

Irene75359 20 hours ago

Hello Dee62

I am relieved your first couple of days have gone well apart from your mouth; please let your team know about that, they should be able to give you something to help.

Treatment had the opposite effect on me, I had diarrhoea (not uncontrollable) for the duration of treatment but constipation can be worse, so make sure you mention that too.

Fingers crossed that everything keeps going smoothly.

Irene xx

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Hi everyone just an update after starting treatments yesterday