Hi everyone, posting here for the first time on behalf of my mother who is currently 11 days in to 28 days of treatment. We have both found all your comments so far really helpful so thank you!
My mother is struggling to cope with the pain in the radiation area (interacting with pre exiting hemorrhoids). Has anyone had experience of this? She’s also struggling with getting the diet right to avoid extremes of constipation/ diarrhea. Any tips for this?
if theres anything specific you have found helpful or that your medical team have recommended/ prescribed please do let us know so we can ask for them. Thank you!
I’ve been treated in Prague, Czech Republic and I’ve been undergoing proton radiation instead of the classic photon radiation.
Yes - I was in a lot of pain with particularly bad open sores, the capsules were slow release and I topped up with the morphine syrup. Sometimes patients really have to self-advocate and stress how bad their pain is, fortunately most cancer departments are really receptive and will prescribe stronger or different drugs.
Your poor Mum - I am hoping she goes on to get adequate pain relief.
Irene xx
Thanks Irene - it sounds like a similar situation in terms of the pain so hoping mum can get prescribed the capsules too
Hi sp1993233875
I still have my Oramorph oral solution 10mg / 5ml as I didn’t take any of it during treatment, the instructions state “take 2.5ml (5mg) when required for pain relief. Dose may be repeated every two to four hours if pain returns.”
I know that others going through treatment when I was also had the slow relief capsules to supplement the oral solution.
Monty xx
Hi Becky just wanted to say thank you for this comment! My dad is having similar pain and also getting no relief from opiates so we will be asking his team about amitriptyline, hope all goes well for you x
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