Recurrence and doctors recommending APR (NEW UPDATE IN POST)

Thank you for the references!  I will be putting an update on the post as things have changed, but appreciate these sites for when needed...

Thank you, Kirsty.  I just got news today that dr wants to postpone surgery and do chemo/immunotherapy with retifanlimab, hoping we can switch to just the immunotherapy at some point if there is good response.  It sounds like APR is still on the table, but hoping for a miracle.  So glad you are doing well!  What an inspiration!!

Hi Kirsty I've read your profile and you had a bad time after your surgery but thankfully you started healing and like you said 2 years on you feel normal You are an inspiration 

My healing is taking.a long time but I am 70 so my body is a lot older so I the  healing will take longer but I am getting there but more slowly 

It is inspiring reading other people stories.zIve had good days and bad days and overdone it at tes but I've learnt that my body had been through a lot and I need to rest more 

I was fit before I walked 3 times a week and went to the gym every day I'm now walking about 4 miles a day and trying to be patient but there is light at the end of the tunnel

Thanks for your support 

Take Care and enjoy life 

Wendy xc

Hi Karen, that’s great news I really hope it is successful for you! I don’t have experience of chemo or immunotherapy so can’t give words of advice on those but sounds like they have come up with a great plan and fingers crossed you can avoid APR (although as I have said it is doable!)

Thank you for your kind words that’s so nice of you.

Wishing you all the best for the treatment xx

Hi KarenhasCancer , 

Thats good that there’s a plan in place now & that your team aren’t jumping straight to surgery, I’ve had a friend that had great results from immunotherapy (completely different diagnosis though) I think we’ll find that it features more & more in people’s treatment plans as time goes on. Keep us updated. 

Nicola 

Hi Wendy,

I’m sorry I missed your reply to this post here. Thank you for saying I am an inspiration - I definitely don’t feel that way but I am proud of myself for just keeping going. Although there isn’t really another way to be when you have young kids I guess! 

It sounds like you are an inspiration yourself being so fit at 70! You and doing all the right things but it just takes time. It was five months before I was fully healed and it’s so frustrating but just remember it’s worth it in the end. 

best wishes

Kirsty xx

Hi Kirsty yes I do.t know how you managed with 2 kids but you have to don't you .You have to keep going .I'm 4 months now and it's only now that I feel I'm starting to heal .Iknow. it's a long slow process but I have to be patient and hope there's light at the end of the tunnel

Take Care and I hope I can message you in the future with updates and questions as it does make me feel better talking to seome who's also experienced the same

Wendy xx