Vaginal bleeding during treatment

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I've already mentioned on here that I've been experiencing bleeding for almost 3 weeks now. It suddenly became really heavy a few days ago and I ended up in a+e after calling the emergency chemo number for advice... they prescribed a clotting agent for a few days, but as I've been really light headed and having dizzy spells I spoke to the nurses at radiotherapy today and a doctor came to see me. They took bloods and to my shock, I now have to have a blood transfusion on Saturday - which I'm pretty scared about tbh.

The doctor told me that if my haemoglobin remains low, it will compromise the effects of the radiotherapy as not enough oxygen will be moving to the area. I just thought it was worth posting about in case anyone else has any similar symptoms. We all need our treatment to work the very best it can! 

Jenna xx

  • Hello Jenna

    I can totally understand why this was a shock.  But (and I am not medically trained, just my experience) I had to have two blood transfusions some years ago.  I was severely anaemic after years of extremely heavy periods and fibroids that were causing real problems.  I was amazed when after the transfusion, I looked at the palms of my hands, and they were pink - I hadn't realised how pale I had become and had got used to my hands looking white and waxy.  The transfusions did the trick for me, and I am very much hoping that a transfusion has the same effect for you and will see you through to the end of your treatment.

    Please come back after Saturday and tell us how you are.

    Big hug and I am keeping everything crossed.

    Irene xx

  • Hi  , 

    I’ve known quite a few people on here that have had blood transfusions during treatment & have remarked on how well they’ve felt afterwards, energy levels up etc., so even though I completely understand your fear try to look at it as a positive thing, you’ll probably feel heaps better afterwards. 

    You’ve highlighted how important it is to make your team aware of anything that’s abnormal for you personally, it’s really important that they know so that you can be checked over & treated as needed so thank you. 

    Nicola 

  • Thanks Irene, that's reassuring. I guess I'm just a bit freaked out at the prospect of having someone else's blood in me! As grateful as I am that people give to help people in need like this... I know it seems a bit irrational when I've had poison pumped into me only a few weeks ago! But this feels even more scary. 

    I will get through it. My daughter is staying a few extra days with me to support me through it xx

  • Thanks Nikki,

    Yes, that was my intention, because I kept thinking, 'I'm ok, there's probably nothing wrong... don't want to waste anyone's time' etc. My daughter pushed me to mention it as she was concerned and I'm glad she did. It really is important to mention anything out of the ordinary xx

  • Hi Jen,

    Just wanted to wish you well for your transfusion today. I know you are understandably anxious about it but I really hope that it goes well and that it makes a big difference to how you’re feeling.

    It’s good that you mentioned your symptoms and your team were vigilant in checking you out. I’m sure you were looking forward to a day off from hospital visits today so I’m sorry that this has happened to you. 
    Best of luck and thoughts are with you xx

  • Thanks Peb x unfortunately I've also got radiotherapy straight after! They were doing maintenance on the machines Monday so only tomorrow off this weekend. Had a couple of days to get my head around transfusion, so I'm calm - at the moment! Lol we'll see how it goes once they start! Sweat smile xx

  • I actually sobbed yesterday, as went to have my cross matching bloods and as it's my first time, they have to get two seperate nurse to take the bloods and check each other's work... I guess they have to be certain they're giving me the right thing... but I was just so overwhelmed and so incredibly tired of being poked with needles, that I broke down. That's twice in each arm this week! I seem to end up crying at the small stuff more than the big stuff. Was fine during chemo infusion. I suppose that riding through this whole process and trying to keep myself upbeat and positive just takes it's toll. It's a lot xx

  • Oh Jen,

     I’m not at all surprised that you ended up in tears. You have really been through the mill. The treatment and diagnosis are hard enough without all the added complications that you have had. I have never had a transfusion but can only imagine that of course it must feel overwhelming to be endlessly poked and prodded.


    You seem to be being very brave and positive which is amazing but crying is most definitely allowed. You can’t keep up a brave face all of the time. 

    Really big hug to you and I’m sure you’ll appreciate that one day of rest tomorrow. Xx

  • We all have a breaking point  & you obviously reached yours yesterday, unsurprisingly. You’ll probably find that once you’ve had this transfusion & you’re feeling stronger physically that your mental wellbeing will follow suit. I know if I’m run down for any reason the tears flow way easier than normal. 

    Sending you a virtual hug.

    Nicola 

  • Thanks for your support guys.... got a bit over emotional again this morning with cannula going in and getting the transfusion started, but I'm ok now. Will be sat here for 3 hours tho! Sob xx