Immunotherapy clinical trial - has anyone had any experience of this?

...after reading through the information properly, the schedule is actually 1 dose via drip every 3 weeks for up to 6 months, which sounds more manageable. I'm definitely leaning more against doing it though. I'm scared enough of what's to come, without adding extra worry and potential serious complications, however small the risk. 1 in 100 doesn't sound small enough to me :( Argh. So much to think about.

Hi I started my treatment in December (finished Jan 24th) I was offered to go on the Corinth trial of immunotherapy. Is this the same one?

After much deliberation I decided to take part. I had my first dose of immunotherapy but unfortunately the Capcitabine tablets made my Hb drop really low. I ended up in hospital over new year with neutropenia and had to have several blood transfusions. 
The oncologist was pretty sure it wasn’t the immunotherapy that caused this. Unfortunately due to delays with the second dose and how poorly I was, the trial team decided I couldn’t continue. 

The only side effect they think came from the immunotherapy was some sores on my lips that took a few months to heal. 

I would definitely make the same decision to go for the immunotherapy again. It was the chemotherapy that made me ill. 
The good thing about being on a trial is you get extra follow ups and they keep a much closer eye on you. 
Good luck with everything x

Thank you x sorry to hear you had complications like that. Can imagine it was pretty traumatic to go through... how are you doing now? 

Yes, it's the same Corinth trial I've been offered. I'm just so unsure, but not ruling it out as yet xx 

I’m doing well so far. I had my three month scans this week so fingers crossed for the results of those. 
I was very unsure about the trial at first but decided to give it a go. I know it’s not for everyone. It’s a very personal decision x

I hope you get your results back soon and get nothing but good news! Xx

I've just realised I'm a bulldog, talking to a hedgehog  it's a funny old world... cute hedgehog tho lol xx

Hi JenW

I’ve just finished treatment and I was on the Corinth study. The immunotherapy was really quick to do and I didn’t really have many side effects apart from fatigue. Being on a study felt like you kinda got ‘VIP’ treatment to be honest, although I’ve nothing to compare to. I also got an earlier  scan and this confirmed that all the cancer had gone. From what I know immunotherapy is highly sort after and lots of people want it but are not offered it. Feel free to ask anything you want to know about my experience on the study. 

Hi Emily,

Thanks for your reply x that's great news, that your cancer has gone :) may I ask how advanced it was before treatment? I've just been told I'm stage 3 and incredibly nervous about it all.

Jenna

Thanks Jenna 

I was stage 2, diagnosed last July and I was very nervous too but your care team will look after you well. Everyone at the hospital was so nice and they will answer any questions or help you with any problems along the way. I was at Mount Vernon Hospital and they were amazing! 

What part of the country are you in? 

I'm in Essex. I'm just not sure the trial is for me... it sounds like you had a really good experience and outcome from it, but I can't get the risks out of my mind. I think I'm just a bit too overwhelmed with the prospect of chemoradiation therapy already and I'm scared to add any extra stress on my body xx