Hi,
I'm 17 months on from the standard chemo-radiotherapy treatment for anal canal cancer, T1N0M0. My only symptom originally was sudden bleeding once every few months and a colonoscopy found a type 11a_c polyp (depressed lesion which is rare and more likely to be invasive).
I've had an "altered" bowel since treatment, the main problem being urgency in the mornings, but after I've been to the loo 3-4 times it's not too bad. Very slight bleeding sometimes, but nothing like before treatment, until a few weeks ago when I had a proper bleed again, just like pre-treatment. No pain, no diarrhea, just lots of bright red blood when i wiped, and since then, no more bleeding.
I've been referred for an urgent flexible sigmoidoscopy, and my team are telling me they believe it is proctitis, but I'm worried it's a recurrence. Has anyone had any experience of proctitis? I have had lots of mucous since treatment, although that has settled down a lot now.
Thanks a lot, Kate
Hello Kate
Every time I have a check-up they remark that I have proctitis - I did a self-examination externally with a mirror and the skin around the anus looks very red and fragile. When I had a DRE a few months ago, that was enough for me to have a bleed, not a huge amount but more than the occasional smear I used to get if I passed a hard stool.
It sounds as though your team is on the ball though, and a flexible sigmoidoscopy will give a better view of what is going on internally. I had that as well as they noticed slight thickening at the tumour site, it was only scar tissue and I was given a report that included a photograph that the sigmoidoscopy had taken internally. The anal canal was smooth and no sign of a tumour but had lots of little red veins which they said was proctitis.
I can completely understand that this is something more to worry about and hope that you get a very quick appointment and are reassured.
Please let us know how you get on.
Irene xx
Hi Kate,
I’m less far along than you post treatment as I’ve just had MRI (post three months treatment no results) the treatment was brutal in as far as my gut /skin/BM have definitely not recovered yet.
I’m so sorry to hear that the bleeding restarted and as far as I know it is a definite symptom of proctitis and there are a few on the forum that know more than me but sending best wishes your way. It sounds like your team are going to take it seriously so that’s always good.
take care
Nell
Hi KateC123 ,
I bled on & off for a couple of years post treatment, mostly caused by a difficult bowel movement but sometimes it seems there was no reason, it would often be a smear on the loo roll but other times there would be blood in the water in the toilet too, I could go to the loo an hour later & there’d be no blood at all. In hindsight I probably had slight radiation proctitis.
It’s a positive thing that your team are following this up with a flexible sigmoidoscopy, hopefully the worst it reveals is proctitis & this will improve over time.
I completely understand the stress you must be under right now, I hope you get a date for your sigmoidoscopy really soon & your mind can be put at rest. Please let us know how you get on.
Nicola
Thanks for your reply, it's reassuring to know you had similar issues. Partly why I'm worried is that this is a new symptom, some 17m after treatment, rather than it having happened sporadically since treatment. One of the few research articles I could find about chronic radiation proctitis said it starts 8-13m after treatment, but can start many years afterwards, so hopefully I'm unduly worried! The appt was requested nearly 2 weeks ago and I'm still waiting for a date, so not sure I agree with their definition of "urgent" but I'll keep you posted as and when I know anything more.
Thanks again, Kate
Hi Kate,
I’m really sorry you’re going through this uncertainty—I can understand how worrying it must be. First of all, it’s great that your team is taking this seriously and getting you checked out with a flexible sigmoidoscopy. That will give you clearer answers soon.
Proctitis is quite common after chemo-radiotherapy, as radiation can cause long-term inflammation in the rectal area. Symptoms like urgency, mucus, and occasional bleeding do line up with it, especially if the bleeding isn't persistent. Some people experience flare-ups even months or years post-treatment.
That said, I completely get why you’d be anxious about recurrence. It’s hard not to go to worst-case scenarios, but try to remind yourself that bright red blood is usually more indicative of surface-level irritation (like proctitis or even hemorrhoids) rather than deeper issues.
Hoping your scope brings reassuring results—please keep us posted, and take care.
Best,
Harshi
Hi Kate,
I'm sorry to hear about your recent symptoms and the worry they're causing you. It's understandable to feel concerned, especially given your history.
Proctitis, which is inflammation of the rectum, can indeed cause symptoms like bleeding, urgency, and mucus discharge. It's often a side effect of radiation therapy, and it can develop months or even years after treatment. On the other hand, recurrence of anal canal cancer is also a possibility, and it's important to get a thorough evaluation to determine the cause.
It's good that you've been referred for a flexible sigmoidoscopy, as this will provide a clearer picture of what's happening internally Proctitis or recurrence of anal canal cancer? - Macmillan Online Community. Try to stay positive and remember that your medical team is taking your concerns seriously and will do their best to get to the bottom of this.
Please keep us updated on how things go with the sigmoidoscopy and how you're feeling. We're all here to support you through this.
Take care..
I'm really sorry to hear about the symptoms you're experiencing and the worry they’re causing you. It’s completely understandable to feel concerned, especially given your history. Facing uncertainty about your health can take a real emotional toll, so please be kind to yourself during this time.
Proctitis, which is inflammation of the rectum, can indeed cause symptoms like bleeding, urgency, and mucus discharge. It’s often a side effect of radiation therapy and can develop months or even years after treatment. That said, it’s good that you’re getting a thorough evaluation to determine the cause, as recurrence of anal canal cancer is also something that needs to be ruled out.
I know waiting for answers can be stressful, and anxiety tends to make everything feel even heavier. If you find yourself overwhelmed, grounding techniques, mindfulness, or even just talking to someone who understands can help ease the emotional burden. It’s great that your medical team is taking your concerns seriously and working toward clarity.
Please keep us updated on how things go with the sigmoidoscopy and how you’re feeling. You’re not alone in this—we’re all here to support you.
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