Only Day 3 and exhausted

Hi Heather09

I'm 2 weeks after treatment. I wasn't overly tired during my treatment but my oncologist had told me I would be so it definitely is a side affect of radiotherapy. It may be the mitomycin, that made me feel very sick. I also think going to and from treatment every day plus the emotional side of it all can be exhausting. Be kind to yourself and have as much rest as you need. Sending big hugs. Xx

Hello Heather,

I think the whole thing is exhausting - physically and emotionally. You have had all the stress of diagnosis, scans, meetings etc and now it is underway I think you are probably just shattered with it all.

My only advice would be to lean into it if you can - try to rest when you are able, eat as well as you feel up to. It's a tough treatment, and tiring enough without trying to fight against it too.

Use the radiotherapy team for any help you need to get through, and treat yourself kindly. 

You'll get through. All the best.

Hi get as much rest as you can and as the others have said it’s overwhelming - talk to your team daily when there and you can cal the helpline too - don’t worry without asking about anything and eat as well as you can (also mentioned sorry).  Hope you have support, please keep us updated as everyone cares and is waiting for, going through similar or are out the other side x priceless help x sending love x Angie 

Hello Heather09

Fatigue is very common, when you think about it your body is going into overdrive trying to repair itself after the radiotherapy.  And chemo can affect you too.  I really hope that your aren't under pressure to try and do things in the next few weeks and that you can just rest as and when you need to.  Some of us sat and binge-watched television and napped all the way through treatment, I did and at the latter part of treatment I would just get into bed and my husband would make something to tempt me to eat.

This treatment is tough but doable and it isn't for long, so keep counting off those days.

Another hug from me.

Irene xx

Hi heather - I have just finished week two of the oral capecitabine and have one mitomycin infusion under my belt with one more to go. Then of course there is the daily radiation. I find mornings are best for me but by the afternoons I am extremely tired and need to rest. I also battle low grade nausea all day long but am able to make myself eat to keep up my strength. How are you feeling now that you are two weeks after treatment and just wondering if you lost your hair during this treatment regimen? 

I should have addressed this to Bungle 1 who has completed treatment. My apologies

Hi

I'm doing OK thanks, not very patient just want to get back to normal. I lost some hair downstairs. My head hair possibly came out a bit more than normal when brushing etc but nothing that anyone else would notice. Hope week 3 is going well, on the home straight now. Xx

Hi! 
I’ve just finished week 5- only 3 more treatments to go. I haven’t noticed any hair loss except downstairs either. Saves having to pay for a Brazilian- every cloud!
Happy flower

x

Thanks - that makes me feel better! I thought it was me just being a bit pathetic. It’s crazy how tired you feel doing so little x