First 3 month scan results

Angie, I’m sure it’s fine. I’ve read about this happening. In fact when I read about it( I can’t find where where I’d read it) I made a mental note to myself that this might happen and not to panic if it does.

I can understand how you feel- after all you’ve been through you wanted to hear a resounding Yes,it’s gone! 
So go ahead and plan your holiday and have a great Christmas and  I have confidence that you will hear the good news at your next scan.
Hugs

Happyflower xx

Hi Angie SE

Sending positive vibes it will be fine. I've only just finished treatment so that 3 months scan is a long way of for me, but my oncologist said that the treatment can still be working at that point so not to read much into that scan. I completely get your feelings though it's only natural. Sending big hugs. Go plan that holiday. Xx

Hi 

How did today go, did they give you the gell  ? X

No- they said wait until I see the doctor on Tuesday to discuss with her  xx

Angie

I was told that the radiotherapy carries on working for months and certainly after that first scan but that doesn't help how you are feeling right now, I know.  The early days are so very stressful waiting to find out if the treatment has worked. I too, had scar tissue that showed up as thickening on the scan but when I had a sigmoidoscopy it showed nothing.  I hope you have someone you can share your worries with and that you aren't putting on a brave face for absolutely everybody, you are going through such a stressful time and most of us need that extra support.  And keeping up a positive face for people can be very taxing in itself.

I am so pleased to hear that you are feeling strong and seeing people, and yes, plan that holiday - after my early scans we were on the ferry the next week!  

Extra hug back

Irene xx

Thanks Irene - it is a small step sideways  - booking a flight soon x x x 

I had my first post treatment scans at 6 weeks here in Surrey! Too early I think because I got the same result as you but they also did a finger up there to check and said it all felt smooth so they were happy it was clear. They said I probs still have swelling etc and I must do as I still have some burning and pain when opening bowels. My next scans are in January m.

i know how you feel as I felt exactly the same! I’m sure it’s just the swelling and the next scans will be better xx

Hi Angie SE ,

Like others have said already try not to read too much into these first round of scans. In my time here there have been many that haven’t had NED results at the first scans but have gone on to get the news we all wait to hear at their next appointment. The radiotherapy will still be doing its thing, there’s also still a whole lot of inflammation going on & the issues of scar tissue at the site of your tumour so what they’re seeing on your scan could be either of these its not necessarily residual tumour. Sit tight & get that holiday booked. As Irene has said I hope you have someone you can confide in how you’re feeling, we don’t have to be strong the whole time, we all have those days where we have to have a few years & get it off our chests, your nearest & dearest will be only to willing to hear how you’re really feeling I’m sure & you know we’re always here. Sending lots of healing thoughts your way. 

Nicola 

Hi Angie , 

I finished my treatment in June , got my scans next week , as my oncologist said it needs 6 months to evaluate correctly .. it’s a long time , in limbo , getting anxious but be reassured it could take a while 

big hugs right back 

Chrissie xx

Hi Angie,

The same thing happened to me, my oncologist said the radiotherapy carries on working for another 3 months and she was very positive, she was right the 6 month scan was all clear. Being told it hasn't gone after the first scan is so upsetting I know and not what you want to hear but it is still working. Sending a hug and positive thoughts. 

Sue