Referred for Chemoradiotherapy and waiting for appointment

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I met with the colorectal surgeon last Friday the 1st November. He was really thoughtful, caring and thorough.  I have T2n1. I was referred to St James for probable chemoradiotherapy. My journey to last Friday was really fast. Just the waiting now for the next stage.  Not sure how it will work though.  

Am I likely to have I have another ct/mri scan for mapping at the same time as my initial appointment? Or will they meet me and then send me another appointment for the mapping and then book the treatments?  Hope someone can help.

  • Hi Fellsider

    My next appointment after the surgeon was with the oncologist who went through the treatment and side affects etc and that i was happy to go ahead, i also met my specialist nurse at the same appointment. Next appointment after that was for scanning, mapping and tattoos. My chemo was administered via a picc line so I had an appointment to have  that put in. Then 2 weeks after picc treatment started. X

  • How are you doing Bungle? You must be almost finished with your treatment. How are you feeling? 
    Happyflower xx

  • Hi Fellsider!

    My treatment staging was the same as Bungle except apart from the first dose of chemo I had chemo in tablet form.

    I hope your next appointments go well. Once you start the time goes quickly. I’ve just finished my 3 rd week. My first side effects started today- a bit of a ‘ niggling’ in my nether regions.

    All the Best to you

    Happyflower

  • Hi

    I finished on Wednesday. I'm not to bad, skin is a bit sore mainly round tops of legs. Passing a lot of mucous since last Saturday which Fingers crossedseems to have eased a bit today. Wanting a poo comes on really quick and burns and had a fluttery bum, but again that all seems to have eased today but not counting my chickens yet. How are you coping? X

  • Thank you. That helps!

  • You and Bungle have helped a lot. Thanks. Good to hear about the side effects as I am expecting to be able to drive myself to treatments. 

  • I drove myself 2 hour round trip everyday bar one when the car had to get fixed. Got a bit uncomfortable towards the end but you still got to sit in the car even if you aren't driving. X

  • May I ask Bungle. Was getting to and from the sessions difficult? I am hoping that I will be able to drive myself but everyone (with no experience but what others have told them} keep telling me I'll need someone with me 'for support' and that I'll be incapble virtually of functioning during the treatment!!!Laughing

  • Thank You again!!  So reasuring and of course you still have to sit in the car driving or not!  My drive will only be 30 mins each way anyway. 

  • Hi Fellsider,

    so glad that your colorectal surgeon was kind and helpful.

    My experience was similar to Bungle in that I then had to see the Oncologist who went through the proposed treatment plan and side effects in detail and gaining consent. It was only after this I had the mapping scan.

     Have just completed radiotherapy number 28 today. My last one. Chemo was given IV on day one and orally on every day of the radiotherapy.

    I wish you all the best for every stage of your treatment. For me it was the awful fear before starting that was the worst. This forum has been incredible and I am glad you have found it. I certainly learned more from this than from the treatment team and that has helped so much.

    The pain towards the end is grim but I feel it’s bearable and use all the helpful tips given on this forum- thanks everyone!

    Wishing you well on this journey Fellsider. X