My wife was diagnosed with anal cancer in July 2020, had a permanent stoma and then radio/chemo in late 2020 which was not successful so an operation in 2021 to remove all of remaining anus and rectum. Complication was that cancer was between anus and vaginal wall so operation required some significant restructuring.
Post operatively there has been no signs of reoccurrence in the last 3 years which is the good news. Bad news is that my wife was left with an abscess right in the center of her pelvis where it had not been possible to fully fill the "space" created by removing the affected organs and she had an infection. This abscess/space regularly fills with materiel and then she will have a high temperature, pain around the wounds and a discharge from what is probably still some form of fissure out to surface.
What she also gets is a hardening of the muscles in the buttocks, usually starting at the top and working its way down, it is almost like an involuntary clenching of the muscles and pain in the pelvis which seems to go hand in hand with a new infection in the abscess/space and followed a few days later by discharge. As she is allergic to the antibiotics they would normally use, what they can give her does not do much and eventually after a few weeks the symptoms subside. She goes through this cycle every few weeks at the moment and the team do not seem to have seen anything quite like this before and as you can imagine, 3 years post operative it is really getting her down.
Has anybody seem anything like this? Any ideas, suggestions?
