reoccurred cancer

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I have posted previously regarding reoccurrence of cancer during recovery from dual therapy 

I seen the consultant and Surgeon regarding my Mri result. 

Consulant told me at the  MDT meeting the radiologist said the option that it could be a ulcer from Radiotherapy( I finished Radiotherapy end feb) could  re scan in couple months. 

Consultant said he is concerned and wanted to see me. 

Examined by both him and Surgeon.  Decision was made  for biopsy in couple weeks to see 100% before next steps can be decided. 

If cancer the surgery will he removal of anus and remove whatever else is affected and stoma fitted. I understand this is a huge surgery. I got a good 4 weeks before I'll know so anxiously got to wait this out again. 

Jinnie x

UPDATE 18TH AUG  

I finished chemo radiotherapy end Feb 2023 Regrowth seen in MRI June. 

Biopsies EUA & HRA RESULTS.  It's cancer again !  The plan is surgery but until a new petscan and ct scan unsure how much is to taken away. Surgeon informed me this is major surgery they so far are planning to take some bowel & anus fitting me with a colostomy bag, skin graft off my tummy to make a flap. This is to be done Sept if the plastic surgeon is next available (we only have 1 surgeon in south Wales to do this) 

Lots to take on board and processing this is massive. How the hell did I get to this stage. I had stage 1 which could hardly be seen on MRI. Brutal chemo radiotherapy didn't kill all cells and now this. Scared and very anxious but trying to make most of days before surgery. 

  • Hi Jinnie,

    I am so sorry you find yourself in this position, what a crap blow that the initial treatment hasn’t worked. I wanted to reach out as I have just had APR surgery myself on 27th July and am slowly recovering. I have had a few setbacks but wanted to say if you have any questions about the surgery or recovery I am happy to try and help, please feel free to message me if you would like. I have also done a bit of a diary on my profile if you want to read through that although I haven’t been as diligent in recent weeks as I was straight after the surgery!

    Best wishes

    kirsty x

  • Good morning Kirsty, I have just read your profile and it’s wonderfully informative and going to be so useful for those going through the same treatment and what can be expected. So thank you very much and I wish you a speedy recovery and to get back to enjoying your family.

    Julie

  • Kirsty

    I just read it too - you are just so brave going through all that (and taking the time to document it all) and I must admit smiling when you described how wonderful it was having a cup of tea!  I don't know how I would manage without my gallon of tea in the morning, it is so much part of my routine.

    I hope you are over the infection now and the wound has settled down a bit and is healing.  And thank you again for putting a comprehensive record on here.

    Irene xx

  • Honestly it was the greatest cup of tea of my life! Made me feel a bit more human after days in CCU haha. Thank you - yes the infection has gone so now just a slow process to get the wound healed which is a shame as the rest of my wounds have done quite well. I am hoping that in a month I might have them all healed up and be feeling a bit stronger! My plan has always been to try to go back to work in November if possible so I still have plenty of time to heal but I won’t rush anything.

    Kirsty x

  • Hi, that was my hope that anyone facing this surgery can get an account of what you might expect. Although my recovery has been a bit wonky so hopefully for everyone else it might be more straightforward! I am home with my boys now so even if healing is slow I am happy to be home xx

  • Wow, Kirsty, what a journey! Mad props for pushing yourself to journal through it despite how miserable you felt for much of it. What a gift to those following in your footsteps. 

    This miserable disease seems to me to be at its nastiest when it goes after young mothers. When I think of how hard some days were, pulling myself forward with my fingernails, I can't imagine trying to do it with little ones. 

    Hope your recovery continues without any further drama!

    Hugs

    Suz

  • Kirsty

    No, please don't rush.  You are SO young and have your whole life ahead of you and work can wait a bit longer if you don't feel 100% up to it.  I am in awe of what you are achieving with two young children, truly.

    Irene xx