I called my hospital, only on hold for 30 mins in all.
I had 3 appointment messages came today, all for sept, oct.
I'm waiting for biopsy results, 2 weeks today.
Finally get to speak to a team nurse and there's no sign of cancer in the biopsies, glad you called she said, we wouldn't have told you till appointment in September.
Hurray hurray it's gone for now . . . .
Thank you all so much for your support so far, this forum has been the best thing to help me through this.
Might be having a glass of fizz tonight.
XXXXXXXXXX
It was big and grew into my vagina wall and veins, T4 N2 M0
Still sore and stenosis and weaker bum muscles but still improving.
All my fingernails came off down to the quick last week, must be some treatment working its way out through them.
Hi Twigley,
Huge congratulations on your biopsy results & thank you so much for posting this along with your original staging etc., this will offer so much hope to those newly diagnosed. It’s a good job you rang for the results, that 30 minutes wait was 30 minutes well spent for news like that!! Enjoy that celebratory glass of fizz (or 3). Congratulations again, I’m over the moon for you.
Nicola
Brilliant news Twigley I’m also T4 N2 M0 so I’m delighted to hear this! I just finished my treatment 10 days ago so I’m in the thick of the 2 week aftermath (ouch!) so hearing news like this really helps me feel a bit more positive. Huge congratulations!! X
Things have been fairly quiet on the forum the last few days but I’ve been thinking of you Prettypinkroses & wondering how you’re doing. Hopefully you’ll turn a corner soon & things will start to improve for you.
Nicola
Hi PPR, its 2 weeks for you now, it's gruelling isn't it ? I ventured outside to the shop at this point and limped to the park the day after. Still painful but just beginning to ease. One of the best things was the chemo wearing off a bit and food and drink tasting better.... onward and upwards ! xx
Thanks Nikki65 I haven’t been very well hence not been online. Neutropenia, a horrendous case of internal vaginsl herpes that was agony, then liver went haywire so we had to stop chemo and now a chest infection/light pneumonia. On the plus front healing downstairs has gone well now.
I feel like I might deserve a bit of a break and to feel better soon. It’s been a long 8 weeks. Thank you for always being here for us!!! ️ xx
Oh gosh Prettypinkroses you’ve had a particularly rough ride throughout all of this haven’t you? Around 6 months after finishing treatment I to had 3 consecutive herpes outbreaks, I wasn’t even aware I had the virus until then! my GP said if I had more than 3 more in the next year she would put me on preventative meds & it was probably due to the chemo wiping out my immune system, I had one further outbreak then no more & haven’t had one since thank goodness! Hopefully once your immune system recovers you’ll be the same & things will sort themselves out. Thinking of you & hope you’re feeling better soon, good to hear downstairs is healing well though xx
Hi Prettypinkroses both the chemo and the radiotherapy wipe out your immune system. Pelvic radiotherapy has a particular effect as the bone marrow in your pelvis produces white blood cells. Before my diagnosis my white blood cell count was really good. Now, two years on it is still just below normal and I do everything I can to boost my immune system-very frustrating! It is much better than during chemo though I have not had any illnesses for about 18 months. You really have had such a rough time but things will pick up so hang on in there. Bev x
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