Novilumab infusion as follow up treatment

FormerMember
FormerMember
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My oncologist wants to start me on Novilumab (Infusion once a month). I finished my chemo on June 5th, 2021 and radiation completed on June 15th.

She is kind of pushing it as early after my treatment ended I had a CT scan of my pelvis and the lymph nodes had only decreased a little.

My biggest question for anyone who has received this immunotherapy is about side effects. I've read about tons of side effects (some serious and permanent) but my onco says there are few side effects. 

I'd like to hear from others who have rec'd this immunotherapy medication so that I can make a reasonable choice.

  • Hi @62yrold I haven’t personally had this treatment. I hope someone will be along soon who has to let you know of their experiences with side effects. Bev. 

  • Perhaps Novilumab is not often used on anal cancer ? but people with other cancers take it, some lung cancers for instance, maybe search on lung cancer forum ? for side effects experience.

    I wish you the best.

    Sarah.