I’m absolutely delighted to share some positive news! My case was discussed at last week’s MDT meeting, and everyone agreed that my 6 month scan showed No Evidence of Disease (NED). I know this doesn't mean I’m completely cured and I’ll still need regular...
Hi , I completed the 28 days of Chemo radiation 2 years ago, which thankfully up to now has been successful. Over the past couple of months , the skin around my anus, perineum and entrance of my vagiina. Have become the very itchy and sore . My oncologist...
I wanted to share an update. I'm six weeks past completion of chemoradiation treatment. As some of you know, I had a pretty tough time with the treatment, landing in the hospital at one point. More recently I've been recovering well, and my first follow...
Hello everybody.. just about to start my 5 and half weeks chemo radiation. Luckily the hospital is on a good day only twenty minutes away. As the majority of my friends work I am wondering how long realistically I will be able to drive myself to my...
Hi all, I have posted a few times about my experience of APR surgery, which I had with no chemo/radiotherapy beforehand as I have Crohn’s and my surgeon believed I had a better chance of getting rid of my cancer with surgery first. It has seemed to...
Has anyone had acupuncture treatment for neuropathy. I finished carbotaxol at the end of August and I only had slight numbness in my toes. Since then what I understand is the 'coasting' effect my feet have been in agonising pain and I can hardly walk...
Hello everyone, I finally finished the 28 days chemoradiation today (Sept 30th) and rang that bell! Wow, that was certainly an endurance test (and arguably worse than the 6 months chemo)! As other lovely members have commented here, this treatment is...
Hello, I had my surgery eight days ago once they got in there they saw that the tumor was not just on the posterior back of the vagina but that it had invaded the rectum and grown around the right of the vagina so they ended up taking much more almost...
Hi all, I was treated for AIN3 in 2023, have been having regular anoscopy since then. Biopsy in July found recurrence of AIN3 so having further laser ablation next week. A few days ago, I had an appt with my gastro team, as I am having issues with bowels...
Hello Had my 23rd fraction on Monday and that was a very joyous day. I elected to stay in hospital weekdays and come home at the weekend, staff fantastic as always, but very tough for me to be inactive for so long. I wanted to give a little overview...
