Hi, I’m new on here and just messaging to say hi and any helpful advice appreciated. My husband was found to have ACC after a scan in the usa in May last year for something completely different. He was found to have a tumour in his neck which was removed...
Hello, my Daughter has just received a Diagnosis of AAC with localised perineural and bone involvement. Now told has lung mets and awaiting referral to the Christy to see Dr Metcalf. She is only young and I just wanted to reach out to anyone else with...
Hi, I was given the news today that the stenosis in my trachea is ACC but it is inoperable and I'm awaiting a PET scan before treatment is discussed. I'm really trying to be positive although everything I read leaves me feeling that my outlook isn't...
Hi all I was diagnosed in March 2020 with ACC in my trachea (start of the pandemic) I had a debulking and radical radiotherapy which left me with a few swallowing issues and still fatigue. in June this year I was told that I now have nodules on my lungs...
Hi all, well this is the first time I've not felt like the only person to have this diagnosis, I was diagnosed in May this year, it's already right though the left side of my head and lung, I've been for some new scans to see how far and fast it's spreading...
