Hi everyone
I am 8 weeks post reconstruction surgery for ACC of palate (T1). Got the all clear from histology but advised to see oncologist by the surgeon because at a previous operation 3 months ago (when they thought my tumour was benign) there was evidence of peri neural invasion. Which is why I went on to have reconstruction.
I am waiting to see oncologist but my feelings are if my recent surgery shows no spread and all clear why have radiotherapy?? If ACC tends to return in the future (so I’ve read) surely it’s better to keep the radiotherapy treatment for when and if the cancer recurs especially if it is graded higher or has metastasised ???
I’ve read such a lot about ACC, it seems fairly standard that everyone has radiotherapy just wondered what people think and if anyone has had a similar experience??
thanks
Elaine
Hiya ruthjp.just to let you no after took tumour out of nose and my top theeth ready for radiotherapy. there then told me i don't need it or any other treatment..i am very confused wat you think can i aks for it..thanks
I would ask for another opinion from the Christie or the Marsden. Somewhere they have experience with acc
which hospital has advised you no treatment ?
Ruth
Royal glam south Wales. It not acc.sorry i didn't explain it a cancer call adenocarcinoma and when they done a biopsy on the tumour they down grade it to a T1 and siad they didn't find any cancer ce from the so rounded tissue they took..thanks you so much for reply
I understand
my experience is with ACC adenocystic carcinoma
I have no knowledge or experience with adenocarcinoma
your prognosis sounds good
Best wishes x
Ruth
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