Just diagnosed with AML

Hi Deb 

sorry to hear about your diagnosis, it’s a very devastating thing to hear. I was diagnosed aged 61 in 2018 , virtually no warning until the last couple of weeks with infections and flu like symptoms. I had a summer of chemotherapy to be told I was in remission that October. I felt great for 5 months but unfortunately they spotted relapse was imminent so I went on to have a bone marrow transplant in May 2019 . It was quite a tough year but by 2020 life was almost back to normal and has been since. 
I hope your treatment goes smoothly, feel free to message me if you wish 

Mark

Hi Mark, thanks for reaching out and sharing details of your journey. It sounds tough but pleased to hear that you're back fighting fit! It's given me hope that I really beat this

Hi Deb C and a second welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.

I don’t have Acute Myeloid Leukaemia (AML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive High-grade non-Hodgkin lymphoma) was then presenting so although my blood cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.

It’s good that Mark parkrun mark has picked up on your post….. we have navigated the journey over the years more specifically when he went through his Stem Cell Transplant (Bone Marrow Transplant) as I have had 2.

You may find the Macmillan Support Line helpful….. open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a few people with AML in it so worth checking.

Always around to help more or just to chat ((hugs))

Hi Mike, thanks so much for your own personal journey details and information it's really useful and great to know that there are positives to take from this.  I think there's a Maggies at the Hospital I'm in currently so will check it out. I still can't believe just over 48hrs ago we had no idea of how life would change!

Thanks for welcoming me to the Group and knowing that there is so much support out there is a real comfort.