Husband newly diagnosed

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Hi, husband of 53 newly diagnosed. He is being amazing, so positive and holding it together. Me however am losing it! Trying not to though for our 2 teenagers. Any support guidance would be much appreciated. Thank you x

  • Hi again  and welcome to this corner of the Community although.

    I don’t have AML but I was diagnosed back in 1999 with a rare, incurable but treatable type of NHL Stage 4a so although my Blood Cancer ‘type’ is different I know this journey rather well.

    Someone being diagnosed with a blood cancer in the family can be such a shock and it does take time to get your head round it and understand how the whole thing works but let’s look for some group members to pick up n your post.

    It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.

    For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

    Always around to help more or just to chat

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi 

    My best advice to give you is stay positive too. I stayed strong and calm through the whole duration determined to beat it and I believe seeing me strong helped my husband and our 2 daughters to be strong. 

    Take one day as it comes. Don't be afraid to ask questions to you're husbands medical team. I used to take notes which helped to relay the info back to my family.

    I had one close friend who I phoned everyday and she helped just by listening.

  • Hi. My husband was diagnosed with AML last June. He has also been brilliant while I’ve been on auto pilot but just recently I’ve been feeling less able to cope. I was told about a group called Maggies, the centre I visit is at Addenbrookes, and they are very welcoming and supportive. I’m now on the waiting list for counselling which I’m very anxious about but hoping it will help me. 
    Take care x