Hello everyone.
I've just found this Macmillan page by chance , last August I was diagnosed with AML and underwent 4 rounds of intense chemotherapy.
I'd had never been really unwell but I was struggling to stay awake and function daily, went to have blood tests and found out I had cancer, my world came crashing down , I was so shocked and couldn't even talk to the consultant at the time .
Spent 6 months in hospital missing my 13 year old son birthday .
Fast forward to now I'm in remission but I seem to be suffering with my memory constantly forgetting things , weight gain, just not feeling my old self mentally at all ( where have I gone?)
I struggle everyday with daily stuff and just feel I'm lost.
Probably sounds silly but this is how I feel .
Any advice be fab.
Hi and welcome to this corner of the community.
I am Mike Thehighlander and I help out around our blood cancer group. Although I don’t have AML but a rare type of Skin Non Hodgkin’s Lymphoma diagnosed back in 1999 I have a good understanding of the challenges a blood cancer journey brings.
There have been a few AML members active over the past week so let’s see them pick up on your post.
Chemo brain is a real thing and for me it lasted a good 12 months post my final treatment but slowly it improved. I used to play mind games like sudoku ever day and also kept a diary of this that happens and reviewed it the firing day, it was all about keeping the mind occupied in some way. My wife used to ask me questions, keep a record and ask them the following day and see how many I could remember- you will get there.
Weight gain for some can be a problem especially if you were on high steroid meds. I see you have posted this question to our experts.l so let’s see what they come back with.
I on the other hand was put on a high protein diet at the end of treatment (Nov 2016) as I lost about 27Kgs during treatment...... then 4 years on no one told me to stop the diet as I had put back about 25kgs
My annual blood tests at the start of lockdown last year showed my cholesterol was up and I was pre-diabetic.
So we cut out most proteins like potatoes, pasta, red meat, processed foods, takeaways and sweet treats. Then upped our fruit, vegetables, fish but we do have venison burgers/sausages (next to no fat) and walk as much as we can aiming for an average of 5000 steps a day and I have lost about 18kgs so far.
Always around to chat ((hugs))
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007