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FormerMember
FormerMember
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Hello everyone. 

 I've just found this Macmillan page by chance , last August I was diagnosed  with AML and underwent 4 rounds of intense chemotherapy. 

I'd had never been really unwell but I was struggling to stay awake and function daily, went to have blood tests and found out I had cancer, my world came crashing down , I was so shocked and couldn't even talk to the consultant at the time .

Spent 6 months in hospital  missing my 13 year old son birthday .

Fast forward to now I'm in remission  but I seem to be suffering  with my memory constantly forgetting things , weight gain, just not feeling my old self mentally  at all ( where have I gone?)

I struggle everyday with daily stuff and just feel I'm lost.

Probably  sounds silly but this is how I feel .

Any advice be fab.

  • Hi  and welcome to this corner of the community.

    I am Mike  and I help out around our blood cancer group. Although I don’t have AML but a rare type of Skin Non Hodgkin’s Lymphoma diagnosed back in 1999 I have a good understanding of the challenges a blood cancer journey brings.

    There have been a few AML members active over the past week so let’s see them pick up on your post.

    Chemo brain is a real thing and for me it lasted a good 12 months post my final treatment but slowly it improved. I used to play mind games like sudoku ever day and also kept a diary of this that happens and reviewed it the firing day, it was all about keeping the mind occupied in some way. My wife used to ask me questions, keep a record and ask them the following day and see how many I could remember- you will get there.

    Weight gain for some can be a problem especially if you were on high steroid meds. I see you have posted this question to our experts.l so let’s see what they come back with.

    I on the other hand was put on a high protein diet at the end of treatment (Nov 2016) as I lost about 27Kgs during treatment...... then 4 years on no one told me to stop the diet as I had put back about 25kgs Rolling eyes

    My annual blood tests at the start of lockdown last year showed my cholesterol was up and I was pre-diabetic.

    So we cut out most proteins like potatoes, pasta, red meat, processed foods, takeaways and sweet treats. Then upped our fruit, vegetables, fish but we do have venison burgers/sausages (next to no fat) and walk as much as we can aiming for an average of 5000 steps a day and I have lost about 18kgs so far.

    Always around to chat ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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