Hi ,
I was diagnosed in may 2019 and after 3 rounds of chemotherapy I got into remission, but still required stem cell transplant in nov 2019.
had various issues but main ones
- serious allergic reaction to cyclosporine (anti rejection meds)
- dropped potassium levels and had spell in HDU
- strokes
- seizure /sepsis due to infection in picc line
- graft vs host disease
But through to other side and been steady for 10 months .
just joined group to speak to others who have been through similar experiences
stay safe everyone
me
Hi welcome to the community and well done you getting through your journey.
You may also want to check in with our dedicated Stem cell transplant group as a number of folks still hang around post SCT to support others on their treatment journey.
Although I had a rare skin NHL I had two Allo SCTs in June 2014 then Oct 2015 and eventually achieved remission in Sep 2016 for the first time in over 17 years and basically living the dream.
We also have this long running thread on the SCT group Life after a SCT - A Survivor's Guide where we have collected our post SCT ups and downs.
You can also see some of the members stories by hitting out community names.
All the best.
