Please help me to understand Myelodysplasia

FormerMember over 14 years ago

1 reply
5 subscribers
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My Mum has been diagnosed with myelodyspasia after having NHL for 5 years. IThis site has given me invaluable info and the people on here are the kindest and bravest I have ever known.

I do not fully understand this illness, do not know what to look for and not sure what to do.

All I know is my wonderful Mum can no longer walk very far, is breathless and sleeps a lot of the day. The Dr's have told me that she will no longer get any treatment for this and to make her comfortable. This is breaking my heart and I just want to try and do whatever I can to make the hours she is awake, happy ones.

I tell her everyday how much I love her and now feel like that little girl who needs her Mum to look after her.

Please can anyone give me any advice

Thank you

FormerMember over 4 years ago

I carnt help on this sorry but i av been diagnosed in just 3 weeks after being unwell for few months that i have AML,this is all a shock for me n i am doing real well apparently.

I have ad chemo,CT scan n it went well,now awaiting to go home for a week then back for chemo for another month n the same till May 21,i avent really adjusted to it.

My hair is now falling out,i av a fabulous partner that comes to see me 5 days a week so he carnt work for his company at mo.

Im sorry i carnt reply to your question but this is all new to me...

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Please help me to understand Myelodysplasia