In full remission but fatigue is crippling

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Hi all,

Finished treatment just before Christmas, had Covid, then got the all-clear from AML on 16th Jan.

Problem now is I am incredibly weak and I tire so very quickly. It is unbelievably frustrating. I have an appointment with a physiotherapist who specialises in assisting cancer patients, but now until 11th March.

I am desperate for any suggestions what I can do manage the situation and try to start building myself up in the meantime.

Thanks in advance,

Tracey Palmer 

  • Hi  as you are ‘just’ say 6 weeks out from finishing your treatment you are in the very early days in your post treatment journey.

    My Consultant told me that going through treatments like these was like doing a boxing match and a marathon every day over the months of treatments and this was done without any training. 

    Think doing the London Marathon without any training and you had to finish it as your life depended on it……. this is the journey you have been on so it most likely will take much longer than you would think to get back to some normality

    What to do, set little achievable goals for each day, if in the early days you only achieve one goal - then great. Look to move further the next day. 

    Check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family…… and there are post treatment courses that helps you navigate thus part.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi Tracey congratulations on getting the all clear on AML. Did you have stem cell transplant as well as chemotherapy? I have AML, currently in hospital after chemotherapy and due for stem cell transplant in March….

    It’s normal to feel very tired…. If possible do a small amount of exercise and build it up slowly from there. If you feel tired have a nap dont be too tough on yourself 

    best wishes 

  • Just chemo, we caught it very early, thankfully.