In full remission but fatigue is crippling

Hi TraceyEnterprise as you are ‘just’ say 6 weeks out from finishing your treatment you are in the very early days in your post treatment journey.

My Consultant told me that going through treatments like these was like doing a boxing match and a marathon every day over the months of treatments and this was done without any training. 

Think doing the London Marathon without any training and you had to finish it as your life depended on it……. this is the journey you have been on so it most likely will take much longer than you would think to get back to some normality

What to do, set little achievable goals for each day, if in the early days you only achieve one goal - then great. Look to move further the next day. 

Check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and give support to all the family…… and there are post treatment courses that helps you navigate thus part.

Hi Tracey congratulations on getting the all clear on AML. Did you have stem cell transplant as well as chemotherapy? I have AML, currently in hospital after chemotherapy and due for stem cell transplant in March….

It’s normal to feel very tired…. If possible do a small amount of exercise and build it up slowly from there. If you feel tired have a nap dont be too tough on yourself 

best wishes 

Just chemo, we caught it very early, thankfully. 

Hey I've been given the all clear I'm back to work now I am tired a lot too it must be part of getting better hope it all goes well

My daughter has been in remission for a few months now but still gets breathless and tired quite easily too.  (27 yrs old now). 

Are there any rehab information sites or classes to build up strength and resilience anywhere ?  

We are in Wiltshire.  Thanks

Hi Gray97 ….. you may want to check for any Local Macmillan Support in your area as MacMillan do run post treatment rehab type courses….. but also check for a Maggie's Centre that can be reached as I attended their Where Now? course and I found it very helpful. 

Thanks Mike.  

No Maggie's near us.  We have contacted the Wiltshire Health Coaches, but they aren't really specialists.  Will have a look at MacMillan again.. they weren't particularly useful in hospital. 

You could also call the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 as they ‘may’ have some local information on the system.