Hello, I recently got diagnosed with AML through routine bloods taken during pregnancy. I have been told I can start treatment while pregnant but while my bloods are currently low but fairly stable they are leaving treatment until I reach at least 26 weeks pregnant. Is there anyone else who has been in this situation and it’s all worked out ok?
Hi Emmadf and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various blood cancer groups.
I don’t have AML but was diagnosed in 1999 with a rare, incurable but treatable type of NHL (CTCL) Stage 4a so although my blood cancer ‘type’ is different I know this journey rather well........ although I obviously have not been an expectant mum ;) but CONGRATULATIONS.
Over the past 5 years since I have been helping out on the Community there have been a few expectant mum's post in our various blood cancer and Stem Cell Transplant Groups. I also volunteer on a Lymphoma specific group and have also talked with mum's on the same path.
Obviously most folks move on from the community and get caught up with their post treatment life but more importantly their newborn. Yes things do turn out well and life moves on.
I had a quick look using the site search tool near the top to check old posts. Try putting in 'pregnent' into the tool and have a look at the older posts and as always you can hit reply and see if the members are still around.
I am going to tag HopefulMummy123. She followed the basic same path as you. But she had Hodgkin's Lymphoma so her treatment had to start during her pregnancy, she had a short break to have her baby and went on to have more treatment including a Stem Cell Transplant...... and the last I hear both were doing well.
I don't know if she will be looking in but if you hit her community name you will see her profile.
Let's look to see if any of the other group members to pick up on your post.
You may also want to check out Leukaemia Care UK. Leukaemia Care UK are the main UK Leukaemia Charity and they may be able to give you information or even link you up with a buddy who has had the same experience....... give them a call on 0808800444
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
You may also find our Cancer Nurse Team in our Ask an Expert section helpful but do allow a few working days for a reply.
Talking to people face to face when on a cancer journey (patient or family) can be very helpful but during these strange times it’s not that available but do check to see if any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
Always around to help more or just to chat ((hugs))
Mike - Thehighlander
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Sorry to hear of your diagnosis. I completely understand how you must be feeling. As Highlander says, I was also diagnosed during early pregnancy and had to wait to begin chemo until I was 5/6 months pregnant. I am now 3 years post treatment and ended up having a Stem Cell Transplant to reach remission, which I had after pregnancy when my little one was 5 months old. She will be 4 in September! I hope that my story gives you a little hope.
I don't log in here very often any more but you are more than welcome to send me a message and I'll receive an email notification. I will try and answer any questions you have or just be here as a listening ear if you wish :)
I also want to quickly let you know of a UK Charity that supports mums who receive a cancer diagnose during pregnancy and the 1st year after baby is born. They are called Mummy's Star - they can support you on a 121 basis and also put you in touch with other Mums through the Facebook Forum or through a Buddy relationship. I don't know how I would have coped without the guys here at Macmillan and at Mummy's Star when I was going through active treatment!
Sending gentle hugs, here if you need me ️