My dad one year on …. Make every day count ❤︎

Hi Love1983 and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our blood cancer groups.

I don’t have AML but was diagnosed way back in 1999 with a rare incurable but treatable type of skin NHL Stage 4a and although my blood cancer ‘type’ is different I understand this journey rather well unfortunately.

Your dad is doing amazing, it is remarkable what the body can do and combined this with the persistence of his medical team yes, every day can be a bonus.

Sorry that Stem Cell Transplant is not possible, this was what turned the tide for me.

Continue to make memories and let’s look for this to continue ((hugs))

Thank you so much for posting this. My husband has aml, had one lot of the intense chemo, but couldn't have more or stem cell transplant due to side effects. Now also having the injections, 7 days every 28 days. Really good to know its worked well for your Dad. Do you know how many courses he had before his blood and platelets started to rise. So far my hubby has had 2 courses, no difference in counts yet. 

Hi it made a difference after the 4 maybe 5 lot of injections. 
they began by going to 30(platelets) hb levels (90) the highest he’s had so far his platelets 79 hb 136 . 
although still not within normal range but 100% better then what they were . 
my dad is on it as palative care. 
He had two lots of the intense chemo as they thought it would take him into full remission. But unfortunately that’s when the mutation was found in the bone marrow TP53. 
x

Great thanks for the reply. My husbands platelets aren't going above 30 yet and his hb is around 80, but he's only had 2. I was wondering as I'd read it takes around 4 before you see a difference, but his dr is already talking about doing another bone marrow biopsy as he thinks they should be going up by now. He's on it as palliative too. The round of intensive chemo he had put him into remission, but almost killed him, so can't have any more of that! All the best for your Dad, and look after yourself too. It's hard being the one watching them go through it too. 

It’s lovely talking to someone who is going through similar situation…. You feel so alone at times . Hardest thing is there’s nothing we can do to make it better….. hope all goes well , please stay in touch let me know how things are going. Fingers crossed the numbers should start going up soon

Thank you. It is hard, you wish you had a magic wand to make everything better! Stay strong :)