Hi, my mum was diagnosed out of the blue with AML about 10 weeks ago.
They’ve said due to her age (72) they can’t do anything as her 3 lines (??) are completely damaged. They said they think she has 6 months & will just make her comfortable for as long as possible.
She’s been for bloods every week and has a transfusion nearly every other week...her platelets today were 13 and so they gave her these but no bloods (blood at 100)
She’s really not herself today, so tired and weary - not eating as her mouth is so sore (They’ve given her a mouthwash)..I wish I could take it all away for her and don’t know what to do...
Hi and welcome to the online community
I'm very sorry to read that your mum has recently been diagnosed with AML and that unfortunately her cancer is untreatable.
If you're worried about how your mum is, or her symptoms worsen, then do get in touch with her team as they should be able to help.
I can see that you're a member of the family and friends group and I'm sure if you post there you'll get lots of support from others who have a loved one living with cancer.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi , so sorry to hear about your mum. How old is your mum?
AML is a very aggressive type of blood cancer and the main treatment would normally be very very strong chemo so her team must think that she is not in a position to have this.
My friend latchbrook has given a great link to follow up on and you may also want contact the Macmillan Support Services as it provides lots of information, support or just a listing ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
((hugs))
Yes, some aggressive types of blood cancer can move fast and as it is carried in the blood and bone marrow hard to control.
I was diagnosed with a rare skin Non Hodgkin’s Lymphoma (blood cancer) way back in 1999, it was slow growing but in late 2013 it became very agreeable so required some very aggressive treatment (hit my name to see my story) and I was given a very poor prognosis having to move to last throw of the dice treatment.
Good that you are going with her to her next appointment on Tuesday.
You do need to do your prep, get some questions down in a note book to allow you to get clear answers and not to let the emotions of the appointment block out the need to come away with answers.
Some thought for your note book
What...
what is the plan?
what treatments are available?
what is next?
(The not so good what’s)
what is her prognosis?.... never a great question to ask :(
what do the months look like?
what should we expect?
Why....
why is the route being proposed?
why is there no treatments being proposed?
Who....
who have the team discussed her case with?
who are our contacts (name and numbers etc) going forward?
Where & When......
where will this be done, will it involve inpatient stay?
when will this be done?
Never....
never leave an appointment wishing you had asked an important question!
Always around to help as best as I can ((hugs))
