Losing granda slowly but quickly the start of my journey.

FormerMember
FormerMember
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October 9th will forever be the day thay broke my heart. Granda has been poorly for three weeks prior we thought it was a combination of his age (81) missing grama as we lost her on march and a possible cold as he still works.

Saturday the 3rd of october enough was enough and i called 111 as I couldnt bare to see him like thay anymore. By the tuesday he had blood tests and dr was admitting him to hospital. He was missing 4 points of blood! All we could think was HOW??? He hadnt cut himself or had accident.

So the wednesday they did a nine marrow biopsy -soon as I heard those words something inside me KNEW is was leukaemia I just knew it was bad. By the friday the 9th they had the results and they werent good.

AML all I heard was the word leukaemia followed by 7 to 8 weeks I still dont know how I was so calm. I'm 33 and my granda is basically my Dad I promised grama when we lost her by a letter I'd look after him and now this is happening.

The last 2 weeks have been a blur. Hes decided no chemo the Dr seemed to want him to choose that option as would give him better quality of life. 

I've helped him write his will, I'm next if kin and executor I know what he wants funeral wise etc. I'm night shift caring as I live at home mams day time. Were both off work sick to care for him.

He had his second blood transfusion friday gone and Saturday I had paramedics out as he didnt seem good at all and I was terrified he was having reaction ti the blood. Everything was ok thankfully.

Yesterday I did a very soecial photo with him my fake wedding day he bought me my dress 10 years ago (wrong bloke wrong time! Thankfully we never married!) And he never saw me in it or on it so we did a fake wedding day photo shoot. I now know why people cry at weddings! 

All I can see is how poorly he looks this has all happened so fast. There was no warning or symptoms. All I can do is wait and watch him get worse and its killing me inside. Everyone keeps telling me how well and how strong I am and I dont feel it. 

Today he was actually hungry at tea time but half way through he started feeling sick again so anti sickness meds dont seem to be working.

If you have made it this far thank you fir reading my experience so far. I am so grateful to Maxine the macmillan nurse at the hospital and macmillan for their help so far.

  • Hi and welcome to the online community

    I'm really sorry to read that your granda has AML and your love for him shines through your post.

    I know what an incredibly hard time this will be for all the family and I hope you don't mind me suggesting that you might benefit from joining the family and friends group, which is a safe and supportive place to share your worries about your granda with others who have a member of their family living with cancer. If this is something you'd like to do then clicking on the link I've created will take you straight to that group.

    Sending a virtual ((hug))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"