my dad had mds which changed to aml, 5 years ago, had a sct from his brother, 5 years has passed, and they are now saying the lukemia is back, treatment plan is chemo injections into belly, no choice of radiotherapy as lungs are not good due to having cancer removed from them and copd, they have also diagnosed him with eptopic heartbeat, is anyone in the same situation. ??
Hi and welcome to the Online Community. So sorry to hear about your dad and the suspected relapse. I had my second Allo Stem Cell Transplant (for NHL) back in Oct 2015 so I do understand the journey you all have been on.
Let’s look for others to come along with some words of wisdom. We do have our Stem cell transplant group but I am not aware of anyone in the same position at the moment.
((hugs))
Hi
I was diagnosed with AML last march. I went onto chemo needles in the stomach 14 out of each month. After 5 months my platelet count ,hemoglobin and neutrophils we very low to the point my dr said it was not working and my survival chances were grim.
But he found a drug called Venclexta which was a 50-50 chance at best. But the results have been amazing. All the blood numbers are up in the safe zone. As well I have Parkinsons disease and type 2 diabetes, but I am on top of these.. I am 74.
Hopefully I will continue the status quo. Remember never give up, never give in, never.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007