Sharing experiences in

Hello there. I was diagnosed in Nov 2019 with AML.

My symptoms started about 6 weeks before in this order:

Bleeding and inflamed gum (dentist thought I was allergic to new toothpaste)

Tiredness, which I thought was due to a previous asthma attack

Fever for a week prior to diagnosis

Bruising on body

Finally large painful boil surrounded by dark purple skin

Called NHS 24 and they referred me to the hospital that night. Doctor on duty then said I could either take a blood test at the hospital, or at the GP the following day. Glad I chose the former.

Thanks. How are you doing? Have you had treatment?

al

Yes I was admitted immediately that night and started my treatment. Once they have diagnosed it, they were very quick to start treatment, as it is fastmoving. I spent the next 5 and a half weeks in hospital as an in patient before I was given my first break home. 3 rounds of chemotherapy and I was in remission March 2020.

I am sure as others would say, AML progresses quickly and once you are diagnosed, they would want to treat you very quickly. The first few days of diagnosis was a mad rush of tests, admission, pre-meds, surgery, chemo. By the end of cycle 1 I had an infection in my port resulting its removal, pneumonia, and had to learn to stand and walk again. I am 36.

Glad to hear you are doing ok 

Hello Al, I had AML FTLP diagnosed in 2014. It started probably in the November, I had a bad cough that I couldn't shake off. In January I had a really bad pain in my lower leg. Doctor thought I had a blood clot, I couldn't put my foot on the ground but having a scan showed no problem. After a few days it went away and then the cough got worse. I wasn't sleeping and kept dropping off in the morning and went back to GP who thought I may have asthma so went on a machine. That night my gums became inflamed and started bleeding. I went back to GP who sent me for blood test. That night she sent me to A&E where they took a bone marrow extract and I started chemo the following day. In June I had the BMT.

Today I have back pain due to arthritis of the hip. I am due for full blood panel end of July. So far all blood results have proved normal.

regards

jackie

Thank you fir sharing, I am so glad to hear you are doing so well.

interestingly I myself had a major pain in my right hip in January where I could hardly walk, that too got better since then I have had pain in both hips, increasingly my skin is feeling tender all over my body and a sore mouth but that is intermittent I went to dentist today he made no comment about my gums so nothing obvious.

al