My spouse was detected with AML over a year ago. She has been through combination chemo, induction chemo, several rounds of cyterabine. Lastly, she took 2 courses of midostaurin (28 days each). The WBC count went down with cyterabine and midostaurin from 600,000 to 70,000. But now it is back up to 900,000. Clearly no chemo is working. She has been asked to undergo transplant.
My question: How long can a person survive with a WBC/blast count of 900,000 while waiting on a marrow transplant? Does such a high WBC count pose an immediate risk?
Hi and welcome to the Community but sorry to see you finding us.
I had a rare type of NHL so can't answer your question but I am sure that some of the AML folks will pick up on your post.
You can however send questions to Caroline our Macmillan Heamatology Nurse but please allow 2 working days to get a reply.
What I do know about is Stem Cell Transplant (SCT)........ I have had 2 Allo SCTs with Stem Cells from my brother...... and I am doing great - you can hit my community name (Thehighlander) and see my journey.
We actually do have a dedicated Stem Cell Transplant group where you can connect with people including those with AML who have been on the SCT rollercoaster.
Putting some information in your profile can help a lot Click here to see how to add details as this helps everyone to see a little about you.
Always around to ask questions and help as best as I can.
