Hi there, I am new to site and never thought I'd join a support group but here I am. I was diagnosed with AML last year on my birthday (what a gift !!) I was working the day before so it came as quite a SHOCK! I began intense chemo with a cycle of 6 spending lots of time in & out of hospital then followed by trial drug working brilliantly then stopped, then onto chemo injections doing great then NOT ! I am presently on increased dose of chemo capsules every day . Some weeks I feel ok and all I can say is enjoy the days you can, be active when able to help your well-being and catch everything consultants, doctors and nurses throw at you. Stay positive, strong and there is always hope.
Hi and welcome to the Online Community, although I am sorry to see you finding us. I am Mike Thehighlander and I help out around our blood cancer forums.
I was diagnosed with my rare type of Lymphoma over 20 years back and yes it does come as a shock but the good thing is that blood cancers are very treatable.
Your mantra of ‘staying positive, strong and there is always hope’ is so true.
I am sure that some of the AML folks will be along to connect with you.
Well done getting something into your profile - this helps a lot.
Treatment can be full of dead ends and change of directions as your team find the best way forward for you, but hold on tight and keep looking at the greater good in all this.
You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support in your area or a Maggie’s Centre as these folks are amazing.
Always around to talk.
I am having a great weekend, just home from a quick overnight visit to my 90 year old mum - they are not made thos way anymore.
Love your breakfast....... on the way home we stopped off at a great little restaurant in the grounds of Gordon Castle near Fochabers.......where Baxter's Jam is made.
There are over 80 types of Lymphoma alone, blood cancer is a science but Heamatology has moved on in many ways over my 20 years. I went from being told "you will never be clear of this"......... to "you are now in remission" so all things are possible.
List your questions as someone may well have a answer........ we also have Caroline - our Heamatology Nurse, who you can post questions but allow a couple of days to get an answer as she does this as a volunteer.
((hugs))
